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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 59
	Adequacy of Prenatal Care Kotelchuck Index (Adequacy of Prenatal Care Utilization (APNCU)) Check all Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Flame Retardants National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2005-2006 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Phenols and Parabens National Health and Nutrition Examination Survey (NHANES) Laboratory Procedure Manual, 2011-2012 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Polychlorinated Biphenyls (PCBs) and Persistent Pesticides National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2005-2006 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Trace Metals National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2003-2004 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Current Pregnancy Status - Bioassay National Health and Nutrition Examination Survey (NHANES) Mobile Examination Center (MEC) Laboratory Procedures Manual, 2013-2014 Check all Current Age Add to Toolkit Remove
	Current Pregnancy Status - Self-Report National Health and Nutrition Examination Survey (NHANES), Reproductive Health Module, 2021-2023 Check all Current Age Add to Toolkit Remove
	Difficulties in Pregnancy Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b), Difficulties in Pregnancy, 2010 Remove
	Family History of Pregnancy Complications Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b), Difficulties in Pregnancy, 2011 Check all Current Age Add to Toolkit Remove
	Fetal Growth Assessment - Percentiles for U.S. Populations Hadlock, F.P., et al. Racial/ethnic standards for fetal groth: the NICHD Fetal Growth Studies. Am J Obstet Gynecol, 2015 Remove
	Gestational Age - Maternal Interview Boston Medical Center, Extremely Low Gestational Age Newborns (ELGAN) Study, Maternal Interview, 2002 Check all Current Age Add to Toolkit Remove
	Gestational Age - Medical Record Abstraction Project Gestational Age Check all Current Age Add to Toolkit Remove
	Gestational Diabetes Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b): CLA Prenatal Labs, Version 04 Check all Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Add to Toolkit Remove
	Health and Wellness Before, During, and After Pregnancy Early Life Exposure Assessment Tool (ELEAT), 2015 Remove
	Mode of Conception - Interview Pregnancy Risk Assessment Monitoring System (PRAMS), Phase 7 Remove
	Mode of Conception - Medical Record Abstraction Extremely Low Gestational Age Newborns (ELGAN) Chart Abstraction Form, 2002 Remove
	Mode of Delivery - Interview Pregnancy Risk Assessment Monitoring System (PRAMS), Phase 7 Remove
	Mode of Delivery - Medical Record Abstraction A Randomized Trial of Induction Versus Expectant Management (ARRIVE), 2016 Remove
	Prenatal and Postpartum Depression The Edinburgh Postnatal Depression Scale© (EPDS) Check all Current Age Current Marital Status Ethnicity and Race Add to Toolkit Remove
	Assessment of Functional Gastrointestinal Disorders (Adolescent) Questionnaire on Pediatric Gastrointestinal Symptoms, Rome III Version (QPGS-RIII) Check all Current Age Add to Toolkit Remove
	Assessment of Functional Gastrointestinal Disorders (Adult) Questionnaire for functional gastrointestinal disorders (FGIDs), Rome III, adult questionnaire Check all Current Age Add to Toolkit Remove
	Assessment of Functional Gastrointestinal Disorders (Child) Questionnaire on Pediatric Gastrointestinal Symptoms, Rome III Version (QPGS-RIII) Check all Current Age Add to Toolkit Remove
	Assessment of Gallbladder Disease and Related Conditions National Health and Nutrition Examination Survey (NHANES) III, Adult Household Questionnaire Check all Current Age Add to Toolkit Remove
	Celiac Sprue - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010 Check all Current Age Add to Toolkit Remove
	Colorectal Procedures and Outcomes (Medical Record Review) Prostate, Lung, Colorectal, and Ovarian Cancer Screening Trial (PLCO), Diagnostic Evaluation& Colorectum (DEC3/DCQ3), 07/01 Check all Current Age Add to Toolkit Remove
	Computed Tomography (CT) of the Abdominal Organs Framingham Heart Study Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Reproductive History - Female Reproductive History - Male Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Emotional Distress Patient-Reported Outcomes Measurement Information System® Item Bank, v.1.0 Remove
	Gastroesophageal Reflux Disease (GERD) Symptoms Gastroesophageal Reflux Disease Questionnaire (GerdQ) Check all Current Age Add to Toolkit Remove
	Health Impact of Inflammatory Bowel Disease Short Inflammatory Bowel Disease Questionnaire (SIBDQ)©, 1989 Check all Current Age Add to Toolkit Remove
	Liver Function - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory procedures manual, 2007 Check all Current Age Add to Toolkit Remove
	Personal History of Gastrointestinal Conditions National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008 Check all Current Age Add to Toolkit Remove
	Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey Check all Current Age Add to Toolkit Remove
	Chronic Stress The Chronic Stress Scale Check all Current Age Current Marital Status Household Roster-Relationships Life Events - Adult Life Events - Child Add to Toolkit Remove
	Coping Styles - Adolescent The Coping Responses Inventory for Youth (CRI-Youth) Check all Current Age Add to Toolkit Remove
	Coping Styles - Adult The Coping Responses Inventory for Youth (CRI-Youth) Check all Current Age Add to Toolkit Remove
	Crime and Delinquency - Adolescent Huizinga, D., et al, Are there multiple paths to delinquency?, J CRIM LAW CRIM, 1991 Check all Current Age Add to Toolkit Remove
	Crime and Delinquency - Adult Dunedin Multidisciplinary Health and Development Research Unit (DMHDRU), Dunedin Multidisciplinary Health and Development Study, 1993 Check all Current Age Add to Toolkit Remove
	Disinhibiting Behaviors - Impulsivity - Adolescent and Adult UPPS Impulsive Behavior Scale Check all Current Age Add to Toolkit Remove
	Disinhibiting Behaviors - Impulsivity - Child UPPS-P Impulsive Behavior Scale for Children Check all Current Age Add to Toolkit Remove
	Emotional State - Adult Check all Current Age Add to Toolkit Remove
	Emotional State - Child Check all Current Age Add to Toolkit Remove
	Exposures to Violence, Trauma, and Victimization - Adult Lifetime Traumatic and Victimization History (LTVH) Check all Current Age Add to Toolkit Remove
	Exposures to Violence, Trauma, and Victimization - Child Lifetime Traumatic and Victimization History (LTVH) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Adolescent NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 13-17) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Adult NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 18+) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Child NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 8-12) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Child Parent Report NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 8-12) Parent Report Check all Current Age Add to Toolkit Remove
	Perceived Social Support Conflict Midlife in the United States II (MIDUS II) Check all Current Age Add to Toolkit Remove
	Perceived Stress Perceived Stress Scale Check all Current Age Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Adult Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF) Check all Current Age Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Children Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) Check all Current Age Add to Toolkit Remove
	Self-esteem The Rosenberg Self-Esteem Scale Check all Current Age Add to Toolkit Remove
	Social Capital The Position Generator Check all Current Age Add to Toolkit Remove
	Social Isolation UCLA Loneliness Scale Check all Current Age Add to Toolkit Remove
	Temperament - Adolescent Early Adolescent Temperament Questionnaire (EATQ-R) Check all Current Age Add to Toolkit Remove
	Temperament - Adult Adult Temperament Questionnaire (ATQ) Check all Current Age Add to Toolkit Remove
	Temperament - Child Childrens Behavior Questionnaire-Very Short Form (CBQ-VSF) Check all Current Age Add to Toolkit Remove
	Temperament - Early Childhood Early Childhood Behavior Questionnaire (ECBQ) Check all Current Age Add to Toolkit Remove
	Temperament - Infant Infant Behavior Questionnaire-Revised (IBQ-R) Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 59

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 February 24). Adequacy of Prenatal Care. https://www.phenxtoolkit.org/protocols/view/240101

PhenX Toolkit. (2026 February 24). Concentrations of Flame Retardants. https://www.phenxtoolkit.org/protocols/view/240201

PhenX Toolkit. (2026 February 24). Concentrations of Phenols and Parabens. https://www.phenxtoolkit.org/protocols/view/240301

PhenX Toolkit. (2026 February 24). Concentrations of Polychlorinated Biphenyls (PCBs) and Persistent Pesticides. https://www.phenxtoolkit.org/protocols/view/240401

PhenX Toolkit. (2026 February 24). Concentrations of Trace Metals. https://www.phenxtoolkit.org/protocols/view/240501

PhenX Toolkit. (2026 February 24). Current Pregnancy Status - Bioassay. https://www.phenxtoolkit.org/protocols/view/240601

PhenX Toolkit. (2026 February 24). Current Pregnancy Status - Self-Report. https://www.phenxtoolkit.org/protocols/view/240603

PhenX Toolkit. (2026 February 24). Difficulties in Pregnancy. https://www.phenxtoolkit.org/protocols/view/240701

PhenX Toolkit. (2026 February 24). Family History of Pregnancy Complications. https://www.phenxtoolkit.org/protocols/view/240801

PhenX Toolkit. (2026 February 24). Fetal Growth Assessment - Percentiles for U.S. Populations. https://www.phenxtoolkit.org/protocols/view/241501

PhenX Toolkit. (2026 February 24). Gestational Age - Maternal Interview. https://www.phenxtoolkit.org/protocols/view/240901

PhenX Toolkit. (2026 February 24). Gestational Age - Medical Record Abstraction. https://www.phenxtoolkit.org/protocols/view/240902

PhenX Toolkit. (2026 February 24). Gestational Diabetes. https://www.phenxtoolkit.org/protocols/view/241001

PhenX Toolkit. (2026 February 24). Health and Wellness Before, During, and After Pregnancy. https://www.phenxtoolkit.org/protocols/view/241101

PhenX Toolkit. (2026 February 24). Mode of Conception - Interview. https://www.phenxtoolkit.org/protocols/view/241201

PhenX Toolkit. (2026 February 24). Mode of Conception - Medical Record Abstraction. https://www.phenxtoolkit.org/protocols/view/241202

PhenX Toolkit. (2026 February 24). Mode of Delivery - Interview. https://www.phenxtoolkit.org/protocols/view/241301

PhenX Toolkit. (2026 February 24). Mode of Delivery - Medical Record Abstraction. https://www.phenxtoolkit.org/protocols/view/241302

PhenX Toolkit. (2026 February 24). Prenatal and Postpartum Depression. https://www.phenxtoolkit.org/protocols/view/241401

PhenX Toolkit. (2026 February 24). Assessment of Functional Gastrointestinal Disorders (Adolescent). https://www.phenxtoolkit.org/protocols/view/190102

PhenX Toolkit. (2026 February 24). Assessment of Functional Gastrointestinal Disorders (Adult). https://www.phenxtoolkit.org/protocols/view/190101

PhenX Toolkit. (2026 February 24). Assessment of Functional Gastrointestinal Disorders (Child). https://www.phenxtoolkit.org/protocols/view/190103

PhenX Toolkit. (2026 February 24). Assessment of Gallbladder Disease and Related Conditions. https://www.phenxtoolkit.org/protocols/view/190201

PhenX Toolkit. (2026 February 24). Celiac Sprue - Assay. https://www.phenxtoolkit.org/protocols/view/190301

PhenX Toolkit. (2026 February 24). Colorectal Procedures and Outcomes (Medical Record Review). https://www.phenxtoolkit.org/protocols/view/190401

PhenX Toolkit. (2026 February 24). Computed Tomography (CT) of the Abdominal Organs. https://www.phenxtoolkit.org/protocols/view/190501

PhenX Toolkit. (2026 February 24). Emotional Distress. https://www.phenxtoolkit.org/protocols/view/190601

PhenX Toolkit. (2026 February 24). Gastroesophageal Reflux Disease (GERD) Symptoms. https://www.phenxtoolkit.org/protocols/view/191101

PhenX Toolkit. (2026 February 24). Health Impact of Inflammatory Bowel Disease. https://www.phenxtoolkit.org/protocols/view/190701

PhenX Toolkit. (2026 February 24). Liver Function - Assay. https://www.phenxtoolkit.org/protocols/view/190801

PhenX Toolkit. (2026 February 24). Personal History of Gastrointestinal Conditions. https://www.phenxtoolkit.org/protocols/view/191001

PhenX Toolkit. (2026 February 24). Physical, Social, and Mental Health Functioning (SF-36V2). https://www.phenxtoolkit.org/protocols/view/191201

PhenX Toolkit. (2026 February 24). Chronic Stress. https://www.phenxtoolkit.org/protocols/view/181301

PhenX Toolkit. (2026 February 24). Coping Styles - Adolescent. https://www.phenxtoolkit.org/protocols/view/180201

PhenX Toolkit. (2026 February 24). Coping Styles - Adult. https://www.phenxtoolkit.org/protocols/view/180202

PhenX Toolkit. (2026 February 24). Crime and Delinquency - Adolescent. https://www.phenxtoolkit.org/protocols/view/181201

PhenX Toolkit. (2026 February 24). Crime and Delinquency - Adult. https://www.phenxtoolkit.org/protocols/view/181202

PhenX Toolkit. (2026 February 24). Disinhibiting Behaviors - Impulsivity - Adolescent and Adult. https://www.phenxtoolkit.org/protocols/view/180401

PhenX Toolkit. (2026 February 24). Disinhibiting Behaviors - Impulsivity - Child. https://www.phenxtoolkit.org/protocols/view/180402

PhenX Toolkit. (2026 February 24). Emotional State - Adult. https://www.phenxtoolkit.org/protocols/view/180501

PhenX Toolkit. (2026 February 24). Emotional State - Child. https://www.phenxtoolkit.org/protocols/view/180502

PhenX Toolkit. (2026 February 24). Exposures to Violence, Trauma, and Victimization - Adult. https://www.phenxtoolkit.org/protocols/view/181401

PhenX Toolkit. (2026 February 24). Exposures to Violence, Trauma, and Victimization - Child. https://www.phenxtoolkit.org/protocols/view/181402

PhenX Toolkit. (2026 February 24). General Self-efficacy - Adolescent. https://www.phenxtoolkit.org/protocols/view/180604

PhenX Toolkit. (2026 February 24). General Self-efficacy - Adult. https://www.phenxtoolkit.org/protocols/view/180606

PhenX Toolkit. (2026 February 24). General Self-efficacy - Child. https://www.phenxtoolkit.org/protocols/view/180603

PhenX Toolkit. (2026 February 24). General Self-efficacy - Child Parent Report. https://www.phenxtoolkit.org/protocols/view/180605

PhenX Toolkit. (2026 February 24). Perceived Social Support Conflict. https://www.phenxtoolkit.org/protocols/view/180701

PhenX Toolkit. (2026 February 24). Perceived Stress. https://www.phenxtoolkit.org/protocols/view/180801

PhenX Toolkit. (2026 February 24). Quality of Life Enjoyment and Satisfaction - Adult. https://www.phenxtoolkit.org/protocols/view/180302

PhenX Toolkit. (2026 February 24). Quality of Life Enjoyment and Satisfaction - Children. https://www.phenxtoolkit.org/protocols/view/180303

PhenX Toolkit. (2026 February 24). Self-esteem. https://www.phenxtoolkit.org/protocols/view/180901

PhenX Toolkit. (2026 February 24). Social Capital. https://www.phenxtoolkit.org/protocols/view/181501

PhenX Toolkit. (2026 February 24). Social Isolation. https://www.phenxtoolkit.org/protocols/view/181001

PhenX Toolkit. (2026 February 24). Temperament - Adolescent. https://www.phenxtoolkit.org/protocols/view/181104

PhenX Toolkit. (2026 February 24). Temperament - Adult. https://www.phenxtoolkit.org/protocols/view/181105

PhenX Toolkit. (2026 February 24). Temperament - Child. https://www.phenxtoolkit.org/protocols/view/181101

PhenX Toolkit. (2026 February 24). Temperament - Early Childhood. https://www.phenxtoolkit.org/protocols/view/181102

PhenX Toolkit. (2026 February 24). Temperament - Infant. https://www.phenxtoolkit.org/protocols/view/181103

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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