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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 69
	Arterial Blood Gas (ABG) Davis, M.D., et al. AARC clinical practice guideline: Blood gas analysis and hemoximetry. Respir Care, 2013 Remove
	Biomarker of exposure to nicotine-containing products - Saliva Bernert JT, et al. Comparison of serum and salivary cotinine measurements by a sensitive high-performance liquid chromatography-tandem mass spectrometry method as an indicator of exposure to tobacco smoke among smokers and nonsmokers. Anal Toxicol, 2000 Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Current Age Ethnicity and Race Add to Toolkit Remove
	Biomarker of exposure to nicotine-containing products - Serum Bernert JT, et al. Interlaboratory comparability of serum cotinine measurements at smoker and nonsmoker concentration levels: a round-robin study. Nicotine Tob Res, 2009 Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Current Age Ethnicity and Race Add to Toolkit Remove
	Biomarker of exposure to nicotine-containing products - Urine Wang L, et al. Collaborative Method Performance Study of the Measurement of Nicotine, Its Metabolites, and Total Nicotine Equivalents in Human Urine. CANCER EPIDEM BIOMAR, 2018 Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Ethnicity and Race Add to Toolkit Remove
	Bronchodilator Responsiveness (BDR) National Institutes of Health (NIH), COPDGene Study Clinical Center Manual of Procedures, 2009 Check all Spirometry - Adult Spirometry - Child Add to Toolkit Remove
	Chest Computed Tomography (CT) Genetic Epidemiology of COPD Clinical Center Manual of Procedures, 2014 Check all Current Age Add to Toolkit Remove
	Exercise Capacity/Six-Minute Walk Test Six-Minute Walk Test (6MWT) Check all Current Age Add to Toolkit Remove
	Immunoglobulin E (Total and Specific) Williams, P. B., et al, Analytic precision and accuracy of commercial immunoassays for specific IgE: Establishing a standard, J ALLERGY CLIN IMMUN, 2000 Check all Current Age Add to Toolkit Remove
	Peak Expiratory Flow Rate (PEFR) Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005 Check all Current Age Add to Toolkit Remove
	Personal and Family History of Respiratory Symptoms/Diseases - Adult American Thoracic Society-Division of Lung Diseases Questionnaire (ATS-DLD 78) & Genetic Epidemiology of COPD Study (COPDGene) Check all Current Age Add to Toolkit Remove
	Personal and Family History of Respiratory Symptoms/Diseases - Child International Study of Asthma and Allergies in Childhood (ISAAC) Manual Check all Current Age Add to Toolkit Remove
	Pulse Oximetry (Exercise) AARC Clinical Practice Guideline: Exercise Testing for Evaluation of Hypoxemia and/or Desaturation: revision & update. Resp Care, 2001 Check all Current Age Add to Toolkit Remove
	Pulse Oximetry (Rest) World Health Organization (WHO), Pulse oximetry training manual, 2011 Check all Current Age Add to Toolkit Remove
	Quality of Life as Affected by Respiratory Disease St. Georges Respiratory Questionnaire (SGRQ) Check all Current Age Add to Toolkit Remove
	Respiratory Rate - Adult Potter, P. A., et al. Fundamentals of Nursing, 1985 Check all Current Age Add to Toolkit Remove
	Respiratory Rate - Child Wallis, L. A., Healy, et al, Age related reference ranges for respiration rate and heart rate from 4 to 16 years, ARCH DIS CHILD, 2005 Check all Current Age Add to Toolkit Remove
	Sleep Apnea - Adult Berlin Questionnaire Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Sleep Apnea - Child The Pediatric Sleep Questionnaire (PSQ), Version 070424 Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Spirometry - Adult Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005 Check all Current Age Add to Toolkit Remove
	Spirometry - Child Beydon, N., et al, An official American Thoracic Society/European Respiratory Society statement: Pulmonary function testing in preschool children, AM J RESP CRIT CARE, 2007 Check all Current Age Add to Toolkit Remove
	Burden of Cancer on Employment Medical Expenditure Panel Survey (MEPS) Check all Current Age Add to Toolkit Remove
	Chronic Medical Conditions - Self Reported Self-Administered Comorbidity Questionnaire (SCQ) Remove
	Cognitive Function Patient-Reported Outcomes Measurement Information System (PROMIS®) - Cognitive Function v2.0 - Short Form 6a Remove
	Fear of Cancer Recurrence Fear of Cancer Recurrence (FCR7) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Financial Hardship Associated with Cancer Medical Expenditure Panel Survey (MEPS), Experiences with Cancer Self-Administered Questionnaire (SAQ), 2011 Remove
	Functional Performance Status Karnofsky Performance Status Scale (KPS) Check all Current Age Add to Toolkit Remove
	Patient Centered Communication - Cancer Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form) Remove
	Patient Experience with Cancer Care - Cancer Surgery Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Patient Experience with Cancer Care - Drug Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Patient Experience with Cancer Care - Radiation Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Quality of Life in Cancer Survivors - Active Treatment Quality of Life in Cancer Patients European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire - Core 30 (QLQ-C30) Check all Current Age Add to Toolkit Remove
	Quality of Life in Cancer Survivors - Long-term Quality of Life Patient/Cancer Survivor Version (QOL-CSV) Check all Current Age Add to Toolkit Remove
	Spirituality in Chronic Illness Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4)) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Supportive Care Needs - Cancer Supportive Care Needs Survey -Short Form 34 (SCNS-SF34) Remove
	Unmet Needs of Cancer Survivors Survivor Unmet Needs Survey (SF- SUNS) Check all Cancer: Personal and Family History Add to Toolkit Remove
	ASA24 Automated Self-administered 24-hour Dietary Recall (ASA24) Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Breastfeeding National Health and Nutrition Examination Survey (NHANES) Diet Behavior and Nutrition Questionnaire, 2021-2023 Check all Current Age Add to Toolkit Remove
	Caffeine Intake Fred Hutchinson Cancer Research Center, Caffeine Questionnaire, 2004 Check all Current Age Add to Toolkit Remove
	Calcium Intake - Adults National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire, 2005 Check all Current Age Add to Toolkit Remove
	Calcium Intake - Children Centers for Disease Control and Prevention (CDC), Eating and Activity Survey Trial, Calcium Food Frequency Questionnaire, 2002 Check all Current Age Add to Toolkit Remove
	Dairy Food Intake (Daily Servings) National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire, 2005 Check all Current Age Add to Toolkit Remove
	Dietary Supplements Use Supplement Frequency Questionnaire (SURE-QX), 2009 Check all Current Age Add to Toolkit Remove
	Fiber Intake National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire, 2005 Check all Current Age Add to Toolkit Remove
	Fruits and Vegetables Intake National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire, 2005 Check all Current Age Add to Toolkit Remove
	Iodine National Health Examination Survey (NHANES) Lab Procedures Manual, 2011-2012 Check all Current Age Add to Toolkit Remove
	Percent Energy from Fat National Cancer Institute (NCI), Percentage energy from fat short instrument (PFat), 1996 Check all Current Age Add to Toolkit Remove
	Selenium National Center for Environmental Health (NCEH), Laboratory Procedure Manual, 2004 Check all Current Age Add to Toolkit Remove
	Sodium Pan American Health Organization (PAHO), Regional Expert Group for Cardiovascular Disease Prevention through Population-wide Dietary Salt Reduction, (2010) Check all Current Age Add to Toolkit Remove
	Sugar Intake (Added) National Cancer Institute (NCI) Five-Factor Screener, 2005 Check all Current Age Add to Toolkit Remove
	Vitamin D Vitamin D External Quality Assessment Scheme (DEQAS) Remove
	Age of Initiation of First Cigarette Use - Adult Co-sponsored Tobacco Use Supplement to the Current Population Survey, 2010 Check all Cigarette Smoking Status - Adult Current Age Add to Toolkit Remove
	Alcohol - 30-Day Quantity and Frequency National Survey on Drug Use and Health (NSDUH), 2015 & National Institute on Alcohol Abuse and Alcoholism (NIAAA) National Epidemiologic Survey on Alcohol and Related Conditions, Wave 1 (NESARC - WAVE 1)/Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV) Check all Alcohol - Lifetime Use Current Age Add to Toolkit Remove
	Alcohol - Age of First Use National Survey on Drug Use and Health (NSDUH), 2015 Check all Alcohol - Lifetime Use Current Age Add to Toolkit Remove
	Alcohol - Lifetime Use National Epidemiologic Survey on Alcohol and Related Conditions (NESARC), Wave 1 Check all Current Age Add to Toolkit Remove
	Alcohol - Lifetime Use Disorder National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Alcohol - Lifetime Use Add to Toolkit Remove
	Alcohol - Maximum Drinks in 24 Hours National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Alcohol - Lifetime Use Current Age Add to Toolkit Remove
	Alcohol - Treatment for Alcohol Usage National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Alcohol - Lifetime Use Add to Toolkit Remove
	Cigarette Nicotine Dependence Fagerstrom Test for Nicotine Dependence, 1991 Check all Current Age Add to Toolkit Remove
	Cigarette Smoking Status - Adolescent Population Assessment of Tobacco and Health (PATH) Study Wave 3 Check all Current Age Add to Toolkit Remove
	Cigarette Smoking Status - Adult Population Assessment of Tobacco and Health (PATH) Study Wave 1 Check all Current Age Add to Toolkit Remove
	Substances - 30-Day Frequency National Survey on Drug Use and Health (NSDUH), 2015 Check all Current Age Substances - Lifetime Use Add to Toolkit Remove
	Substances - Age of First Use National Survey on Drug Use and Health (NSDUH), 2015 Check all Current Age Substances - Lifetime Use Add to Toolkit Remove
	Substances - Lifetime Substance Use Disorder National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Substances - Lifetime Use Add to Toolkit Remove
	Substances - Lifetime Use National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Current Age Add to Toolkit Remove
	Tobacco - 30-Day Quantity and Frequency - Adolescent National Survey on Drug Use and Health (NSDUH), 2014 Check all Cigarette Smoking Status - Adolescent Current Age Add to Toolkit Remove
	Tobacco - 30-Day Quantity and Frequency - Adult Tobacco Use Supplement to the Current Population Survey (TUS-CPS), 2010 Check all Cigarette Smoking Status - Adult Current Age Add to Toolkit Remove
	Tobacco - Age of Initiation of Use - Adolescent National Survey on Drug Use and Health (NSDUH), 2008 Check all Cigarette Smoking Status - Adolescent Current Age Add to Toolkit Remove
	Tobacco - Age of Offset of Cigarette Use - Adolescent National Survey on Drug Use and Health (NSDUH), 2015 Check all Cigarette Smoking Status - Adolescent Current Age Add to Toolkit Remove
	Tobacco - Age of Offset of Cigarette Use - Adult Tobacco Use Supplement to the Current Population Survey (TUS-CPS), 2006 Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 69

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 February 24). Arterial Blood Gas (ABG). https://www.phenxtoolkit.org/protocols/view/90202

PhenX Toolkit. (2026 February 24). Biomarker of exposure to nicotine-containing products - Saliva. https://www.phenxtoolkit.org/protocols/view/91708

PhenX Toolkit. (2026 February 24). Biomarker of exposure to nicotine-containing products - Serum. https://www.phenxtoolkit.org/protocols/view/91709

PhenX Toolkit. (2026 February 24). Biomarker of exposure to nicotine-containing products - Urine. https://www.phenxtoolkit.org/protocols/view/91707

PhenX Toolkit. (2026 February 24). Bronchodilator Responsiveness (BDR). https://www.phenxtoolkit.org/protocols/view/90301

PhenX Toolkit. (2026 February 24). Chest Computed Tomography (CT). https://www.phenxtoolkit.org/protocols/view/90402

PhenX Toolkit. (2026 February 24). Exercise Capacity/Six-Minute Walk Test. https://www.phenxtoolkit.org/protocols/view/90602

PhenX Toolkit. (2026 February 24). Immunoglobulin E (Total and Specific). https://www.phenxtoolkit.org/protocols/view/90701

PhenX Toolkit. (2026 February 24). Peak Expiratory Flow Rate (PEFR). https://www.phenxtoolkit.org/protocols/view/90801

PhenX Toolkit. (2026 February 24). Personal and Family History of Respiratory Symptoms/Diseases - Adult. https://www.phenxtoolkit.org/protocols/view/90901

PhenX Toolkit. (2026 February 24). Personal and Family History of Respiratory Symptoms/Diseases - Child. https://www.phenxtoolkit.org/protocols/view/90902

PhenX Toolkit. (2026 February 24). Pulse Oximetry (Exercise). https://www.phenxtoolkit.org/protocols/view/91001

PhenX Toolkit. (2026 February 24). Pulse Oximetry (Rest). https://www.phenxtoolkit.org/protocols/view/91102

PhenX Toolkit. (2026 February 24). Quality of Life as Affected by Respiratory Disease. https://www.phenxtoolkit.org/protocols/view/91301

PhenX Toolkit. (2026 February 24). Respiratory Rate - Adult. https://www.phenxtoolkit.org/protocols/view/91403

PhenX Toolkit. (2026 February 24). Respiratory Rate - Child. https://www.phenxtoolkit.org/protocols/view/91402

PhenX Toolkit. (2026 February 24). Sleep Apnea - Adult. https://www.phenxtoolkit.org/protocols/view/91501

PhenX Toolkit. (2026 February 24). Sleep Apnea - Child. https://www.phenxtoolkit.org/protocols/view/91502

PhenX Toolkit. (2026 February 24). Spirometry - Adult. https://www.phenxtoolkit.org/protocols/view/91601

PhenX Toolkit. (2026 February 24). Spirometry - Child. https://www.phenxtoolkit.org/protocols/view/91602

PhenX Toolkit. (2026 February 24). Burden of Cancer on Employment. https://www.phenxtoolkit.org/protocols/view/320101

PhenX Toolkit. (2026 February 24). Chronic Medical Conditions - Self Reported. https://www.phenxtoolkit.org/protocols/view/320201

PhenX Toolkit. (2026 February 24). Cognitive Function. https://www.phenxtoolkit.org/protocols/view/320301

PhenX Toolkit. (2026 February 24). Fear of Cancer Recurrence. https://www.phenxtoolkit.org/protocols/view/320401

PhenX Toolkit. (2026 February 24). Financial Hardship Associated with Cancer. https://www.phenxtoolkit.org/protocols/view/320501

PhenX Toolkit. (2026 February 24). Functional Performance Status. https://www.phenxtoolkit.org/protocols/view/320601

PhenX Toolkit. (2026 February 24). Patient Centered Communication - Cancer. https://www.phenxtoolkit.org/protocols/view/320701

PhenX Toolkit. (2026 February 24). Patient Experience with Cancer Care - Cancer Surgery. https://www.phenxtoolkit.org/protocols/view/320801

PhenX Toolkit. (2026 February 24). Patient Experience with Cancer Care - Drug Therapy. https://www.phenxtoolkit.org/protocols/view/320802

PhenX Toolkit. (2026 February 24). Patient Experience with Cancer Care - Radiation Therapy. https://www.phenxtoolkit.org/protocols/view/320803

PhenX Toolkit. (2026 February 24). Quality of Life in Cancer Survivors - Active Treatment. https://www.phenxtoolkit.org/protocols/view/320901

PhenX Toolkit. (2026 February 24). Quality of Life in Cancer Survivors - Long-term. https://www.phenxtoolkit.org/protocols/view/320902

PhenX Toolkit. (2026 February 24). Spirituality in Chronic Illness. https://www.phenxtoolkit.org/protocols/view/321001

PhenX Toolkit. (2026 February 24). Supportive Care Needs - Cancer. https://www.phenxtoolkit.org/protocols/view/321101

PhenX Toolkit. (2026 February 24). Unmet Needs of Cancer Survivors. https://www.phenxtoolkit.org/protocols/view/321201

PhenX Toolkit. (2026 February 24). ASA24. https://www.phenxtoolkit.org/protocols/view/51202

PhenX Toolkit. (2026 February 24). Breastfeeding. https://www.phenxtoolkit.org/protocols/view/50102

PhenX Toolkit. (2026 February 24). Caffeine Intake. https://www.phenxtoolkit.org/protocols/view/50301

PhenX Toolkit. (2026 February 24). Calcium Intake - Adults. https://www.phenxtoolkit.org/protocols/view/50202

PhenX Toolkit. (2026 February 24). Calcium Intake - Children. https://www.phenxtoolkit.org/protocols/view/50201

PhenX Toolkit. (2026 February 24). Dairy Food Intake (Daily Servings). https://www.phenxtoolkit.org/protocols/view/50401

PhenX Toolkit. (2026 February 24). Dietary Supplements Use. https://www.phenxtoolkit.org/protocols/view/50501

PhenX Toolkit. (2026 February 24). Fiber Intake. https://www.phenxtoolkit.org/protocols/view/50601

PhenX Toolkit. (2026 February 24). Fruits and Vegetables Intake. https://www.phenxtoolkit.org/protocols/view/50701

PhenX Toolkit. (2026 February 24). Iodine. https://www.phenxtoolkit.org/protocols/view/51301

PhenX Toolkit. (2026 February 24). Percent Energy from Fat. https://www.phenxtoolkit.org/protocols/view/50801

PhenX Toolkit. (2026 February 24). Selenium. https://www.phenxtoolkit.org/protocols/view/50901

PhenX Toolkit. (2026 February 24). Sodium. https://www.phenxtoolkit.org/protocols/view/51401

PhenX Toolkit. (2026 February 24). Sugar Intake (Added). https://www.phenxtoolkit.org/protocols/view/51001

PhenX Toolkit. (2026 February 24). Vitamin D. https://www.phenxtoolkit.org/protocols/view/51101

PhenX Toolkit. (2026 February 24). Age of Initiation of First Cigarette Use - Adult. https://www.phenxtoolkit.org/protocols/view/30703

PhenX Toolkit. (2026 February 24). Alcohol - 30-Day Quantity and Frequency. https://www.phenxtoolkit.org/protocols/view/30301

PhenX Toolkit. (2026 February 24). Alcohol - Age of First Use. https://www.phenxtoolkit.org/protocols/view/30202

PhenX Toolkit. (2026 February 24). Alcohol - Lifetime Use. https://www.phenxtoolkit.org/protocols/view/30101

PhenX Toolkit. (2026 February 24). Alcohol - Lifetime Use Disorder. https://www.phenxtoolkit.org/protocols/view/30502

PhenX Toolkit. (2026 February 24). Alcohol - Maximum Drinks in 24 Hours. https://www.phenxtoolkit.org/protocols/view/30402

PhenX Toolkit. (2026 February 24). Alcohol - Treatment for Alcohol Usage. https://www.phenxtoolkit.org/protocols/view/31501

PhenX Toolkit. (2026 February 24). Cigarette Nicotine Dependence. https://www.phenxtoolkit.org/protocols/view/31001

PhenX Toolkit. (2026 February 24). Cigarette Smoking Status - Adolescent. https://www.phenxtoolkit.org/protocols/view/30603

PhenX Toolkit. (2026 February 24). Cigarette Smoking Status - Adult. https://www.phenxtoolkit.org/protocols/view/30604

PhenX Toolkit. (2026 February 24). Substances - 30-Day Frequency. https://www.phenxtoolkit.org/protocols/view/31302

PhenX Toolkit. (2026 February 24). Substances - Age of First Use. https://www.phenxtoolkit.org/protocols/view/31202

PhenX Toolkit. (2026 February 24). Substances - Lifetime Substance Use Disorder. https://www.phenxtoolkit.org/protocols/view/31601

PhenX Toolkit. (2026 February 24). Substances - Lifetime Use. https://www.phenxtoolkit.org/protocols/view/31102

PhenX Toolkit. (2026 February 24). Tobacco - 30-Day Quantity and Frequency - Adolescent. https://www.phenxtoolkit.org/protocols/view/30803

PhenX Toolkit. (2026 February 24). Tobacco - 30-Day Quantity and Frequency - Adult. https://www.phenxtoolkit.org/protocols/view/30804

PhenX Toolkit. (2026 February 24). Tobacco - Age of Initiation of Use - Adolescent. https://www.phenxtoolkit.org/protocols/view/30701

PhenX Toolkit. (2026 February 24). Tobacco - Age of Offset of Cigarette Use - Adolescent. https://www.phenxtoolkit.org/protocols/view/30903

PhenX Toolkit. (2026 February 24). Tobacco - Age of Offset of Cigarette Use - Adult. https://www.phenxtoolkit.org/protocols/view/30902

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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