My Toolkit

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DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 132
	Ethnicity and Race U.S. Census Bureau, Census 2020, Questionnaire Remove
	Current Marital Status Behavioral Risk Factor Surveillance System (BRFSS), Core Section 8: Demographics, 2018 Check all Current Age Add to Toolkit Remove
	Educational Attainment - Individual National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020 Remove
	Current Employment Status Panel Study of Income Dynamics (PSID), 2007 Check all Current Age Add to Toolkit Remove
	Cigarette Nicotine Dependence Fagerstrom Test for Nicotine Dependence, 1991 Check all Current Age Add to Toolkit Remove
	Electronic Nicotine Product Device Type Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022) Check all Current Age Add to Toolkit Remove
	Current Age National Health and Nutrition Examination Survey (NHANES), 2019-2020 Remove
	Use of Tobacco Products Population Assessment of Tobacco and Health (PATH) Study, Wave 7 Adult Survey Instrument Remove
	Behavior Economics/Purchase Behavior The Cigarette Purchase Task (CPT) Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Current Age Add to Toolkit Remove
	Motivation to Quit - Single Item Turner, L.R., et al. Motivation and reasons to quit: Predictive validity among adolescent smokers. AM J HEALTH BEHAV, 2004 Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Add to Toolkit Remove
	Motivation to Quit - Multiple Item The Reasons for Quitting (RFQ) Questionnaire Check all Cigarette Smoking Status - Adult Add to Toolkit Remove
	Multigroup Ethnic Identity The Phinney Scale Remove
	Susceptibility to Tobacco Products Population Assessment of Tobacco and Health (PATH) Study: Final Youth Interview, Wave 7 (January 2022 - December 2022) Check all Cigarette Smoking Status - Adolescent Current Age Add to Toolkit Remove
	House Rules About Tobacco Use Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022) Remove
	Peer and Family Influence on Smoking The International Tobacco Control Policy Evaluation Project (ITC). Youth and Young Adult Tobacco & Vaping Survey, Wave 7 Survey, August 2023 Check all Current Age Add to Toolkit Remove
	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25 Check all Current Age Add to Toolkit Remove
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile Check all Current Age Add to Toolkit Remove
	Quality of Care - Adults The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Quality of Care Module Check all Current Age Add to Toolkit Remove
	Quality of Care - Children Consumer Assessment of Healthcare Providers and Systems (CAHPS), Health Plan Survey 4.0, Child Medicaid Questionnaire Check all Current Age Add to Toolkit Remove
	Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), short form Check all Current Age Add to Toolkit Remove
	PedsQL Sickle Cell Disease Module The PedsQL Sickle Cell Disease Module Check all Current Age Add to Toolkit Remove
	Self-efficacy in Sickle Cell Disease The Sickle Cell Disease Self-Efficacy Scale (SCSES) Check all Current Age Add to Toolkit Remove
	Intelligence Scale - 16 to 90 years Wechsler Adult Intelligence Scale, 4th ed., (WAIS-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Intelligence Scale - 2 years, 6 months to 7 years, 7 months Wechsler Preschool and Primary Scale of Intelligence, 4th ed. (WPPSI-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Intelligence Scale - 6 to 16 years 11 months Wechsler Intelligence Scale for Children, 5th ed., (WISC) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Intelligence Scale - Birth to 3.5 years Bayley Scales of Infant and Toddler Development (BSID) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Adaptive Behavior/Adaptive Function Vineland Adaptive Behavior Scales., 2nd ed. (VINELAND-II) Check all Current Age Add to Toolkit Remove
	Stroke Impact Scale (SIS) - Adults The Stroke Impact Scale (SIS) Check all Current Age Add to Toolkit Remove
	Recovery and Recurrence Questionnaire (RRQ) - Pediatrics The Recovery and Recurrence Questionnaire (RRQ) Check all Current Age Add to Toolkit Remove
	NIH Stroke Scale (NIHSS) National Institutes of Health Stroke Scale (NIHSS) Check all Current Age Add to Toolkit Remove
	Pediatric NIH Stroke Scale (PedNIHSS) Pediatric National Institutes of Health Stroke Scale (PedNIHSS) Check all Current Age Add to Toolkit Remove
	Stroke Risk in Children with Sickle Cell Disease - TCD Stoke Prevention in Sickle Cell Disease (STOP) Study, Transcranial Doppler (TCD) ultrasonography Check all Current Age Add to Toolkit Remove
	Stroke Risk in Children with Sickle Cell Disease - TCDi Imaging Transcranial Doppler (TCDi) ultrasonography Check all Current Age Add to Toolkit Remove
	Sustained and Selective Attention The Conners Continuous Performance Test 3 (CPT 3™) Check all Current Age Add to Toolkit Remove
	Pain Brief Pain Inventory©(BPI), Short Form Remove This protocol is retired.
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function The Trail Making Test - Adult Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Child The Behavior Rating Inventory of Executive Function (BRIEF) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Migraine - Adult American Migraine Study II, Self-Administered Questionnaire for Migraine Check all Current Age Add to Toolkit Remove
	Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS) Check all Current Age Add to Toolkit Remove
	Verbal Memory - Adult Wechsler Memory Scale®, Logical Memory subtest, Fourth Edition (WMS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Verbal Memory - Child Childrens Memory Scale® (CMS), Verbal Memory subscales Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Visual Memory - Adult Wechsler Memory Scale®, Visual Reproductions subtest, Fourth Edition (WMS®-IV) Check all Current Age Add to Toolkit Remove
	Visual Memory - Child Childrens Memory Scale® (CMS), Visual Memory subtest Check all Current Age Add to Toolkit Remove
	Working Memory - Adult Wechsler Adult Intelligence Scale®, Digit Span subtest, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Working Memory - Child Childrens Memory Scale® (CMS), Attention and Concentration subtests Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Motor and Attentional Impulsivity (Immediate and Delayed Memory Task) Immediate and Delayed Memory Task (IMT/DMT) Check all Current Age Add to Toolkit Remove
	Health Quality Index for Economic Evaluations - Child and Adolescent EuroQol Group - EQ-5D-Y Check all Current Age Add to Toolkit Remove
	Health Quality Index for Economic Evaluations - Adult EQ-5D-3L Check all Current Age Add to Toolkit Remove
	Impairment - Adolescent The Columbia Impairment Scale (CIS) Remove
	Impairment - Adult The World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) Remove
	Service Utilization and Cost Global Appraisal of Individual Needs (GAIN) Check all Current Age Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months Alcohol Use Disorders Identification Test (AUDIT) Check all Alcohol - Lifetime Use Current Age Substances - Lifetime Use Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adolescents Treatment Improvement Protocol (TIP) Services, Simple Screening Instrument for Alcohol and Other Drugs (SSI-AOD) Check all Alcohol - Lifetime Use Current Age Substances - Lifetime Use Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime Brief Michigan Alcoholism Screening Test (Brief MAST) Check all Alcohol - Lifetime Use Current Age Substances - Lifetime Use Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adults - Drugs Drug Abuse Screening Test (DAST-10) Check all Alcohol - Lifetime Use Current Age Substances - Lifetime Use Add to Toolkit Remove
	Alcohol - 30-Day Quantity and Frequency National Survey on Drug Use and Health (NSDUH), 2015 & National Institute on Alcohol Abuse and Alcoholism (NIAAA) National Epidemiologic Survey on Alcohol and Related Conditions, Wave 1 (NESARC - WAVE 1)/Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV) Check all Alcohol - Lifetime Use Current Age Add to Toolkit Remove
	Substances - 30-Day Frequency National Survey on Drug Use and Health (NSDUH), 2015 Check all Current Age Substances - Lifetime Use Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Adult Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF) Check all Current Age Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Children Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) Check all Current Age Add to Toolkit Remove
	Short Form-McGill Pain Questionnaire-2 (SF-MPQ-2) Short-form McGill Pain Questionnaire (SF-MPQ-2) Remove This protocol is retired.
	Adolescent Pediatric Pain Tool (APPT) Adolescent Pediatric Pain Tool (APPT) Remove This protocol is retired.
	Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey Check all Current Age Add to Toolkit Remove
	Height - Knee Height National Health and Nutrition Examination Survey III (NHANES III), Body Measurements, 1988 Check all Current Age Add to Toolkit Remove
	Pulse Oximetry (Rest) World Health Organization (WHO), Pulse oximetry training manual, 2011 Check all Current Age Add to Toolkit Remove
	Hemoglobin Characterization Association of Public Health Laboratories (APHL) Check all Complete Blood Count (CBC) Current Age History of Transfusion Medication Inventory Reticulocyte Count Add to Toolkit Remove
	Complete Blood Count (CBC) National Health and Nutrition Examination Survey (NHANES), Laboratory procedures Manual, 2010 Check all Current Age History of Transfusion Medication Inventory Add to Toolkit Remove
	Height - Self-Reported Height National Health and Nutritional Examination Survey (NHANES) Weight History Questionnaire, 2019-2020 Check all Current Age Add to Toolkit Remove
	Weight - Measured Weight National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2021-2023 Check all Current Age Add to Toolkit Remove
	Weight - Self-Reported Weight National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2019-2020 Check all Current Age Add to Toolkit Remove
	Height - Recumbent Length National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2021-2023 Check all Current Age Add to Toolkit Remove
	Height - Standing Height National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2021-2023 Check all Current Age Add to Toolkit Remove
	Birthplace American Community Survey (ACS), 2008 Remove
	English Proficiency California Health Interview Survey (CHIS), Adult questionnaire, 2018 Remove
	Occupational Prestige Check all Current Employment Status Add to Toolkit Remove
	Food Insecurity U.S. Household Food Security Survey Module: Six-Item Short Form, Economic Research Service, USDA, 2024 Remove
	Health Insurance Coverage Health Reform Monitoring Survey, 2015 Check all Current Age Add to Toolkit Remove
	Access to Health Services National Health Interview Survey (NHIS) Utilization Questionnaire, 2020 Check all Current Address Current Age Ethnicity and Race Health Insurance Coverage Add to Toolkit Remove
	Sexual Orientation All of Us Research Program, Participant Provided Information (PPI), 2018 Remove
	Current Address National Health and Nutrition Examination Survey (NHANES), Screener Module 1, 2019-2020 Remove
	Self-Reported General Health Status National Health Interview Survey (NHIS), Family - Family Identification, 2014 Check all Current Age Add to Toolkit Remove
	Annual Household Family Income and Number of People Supported All of Us Research Program, Participant Provided Information (PPI), 2017 and Hispanic Community Health Study / Study of Latinos (HCHS/SOL) Check all Current Age Household Roster-Relationships Add to Toolkit Remove
	Health Literacy All of Us Research Program, Participant Provided Information (PPI), 2017 Check all Current Age Educational Attainment - Individual Add to Toolkit Remove
	Air Quality Index Environmental Protection Agency (EPA), Air Quality Index (AQI) Check all Current Address Add to Toolkit Remove
	Concentrated Poverty American Community Survey (ACS), 5-year estimates, Concentrated Poverty, 2009-2018 Check all Current Address Add to Toolkit Remove
	Educational Attainment - Community American Community Survey (ACS), 5-year estimates, Educational Attainment, 2013-2017 Check all Current Address Residential History Add to Toolkit Remove
	Environmental Justice Environmental Protection Agency (EPA), Environmental Justice Screening and Mapping Tool (EJSCREEN) Check all Current Address Add to Toolkit Remove
	Food Swamp Traditional Retail Food Environment Index (RFEI) Check all Current Address Add to Toolkit Remove
	Percent Unionized for Non-Agricultural Labor Force Current Population Survey, Labor Force Items Remove
	Race/Ethnic Residential Segregation - U.S. Census U.S. Census Bureau, Census, 1990, 2000, 2010 Check all Current Address Residential History Add to Toolkit Remove
	Race/Ethnic Residential Segregation - American Community Survey American Community Survey (ACS), 5-year estimates Check all Current Address Residential History Add to Toolkit Remove
	Race/Ethnic Residential Segregation - Separation (S) Index, Unbiased American Community Survey (ACS), 5-year estimates Remove
	Social Vulnerability Social Vulnerability Index (SVI) Remove
	Residential Concentrations of Income Index of Concentration at the Extremes (ICE) Check all Current Address Residential History Add to Toolkit Remove
	Minimum Wage U.S. Department of Labor, State Minimum Wage Laws, 2022 Remove
	Neighborhood Walking and Biking Environment Microscale Audit of Pedestrian Streetscapes (MAPS-Mini) Check all Annual Household Family Income and Number of People Supported Current Address Current Age Ethnicity and Race Add to Toolkit Remove
	Water Access and Sanitation American Housing Survey (AHS), 2019 Check all Current Address Household Roster-Relationships Add to Toolkit Remove
	Sickle Cell Pain Burden Interview Sickle Cell Pain Burden Interview (SCPBI) Check all Medications (Current and Past Use of Pain Relievers, Statins, and Steroids) Add to Toolkit Remove
	Pain Catastrophizing - Adult Pain Catastrophizing Scale Remove
	Pain Catastrophizing - Child Pain Catastrophizing Scale - Child Version (PCS-C) Remove
	Pain Catastrophizing - Parent Proxy Pain Catastrophizing Scale - Parent Version (PCS-P) Remove
	Pain Coping - Adult Coping Strategies Questionnaire Remove
	Pain Coping - Child Pain Coping Questionnaire - Short Form Remove
	Pain Intensity - Adolescent and Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Numeric Rating Scale v.1.0 - Pain Intensity - 1a Remove
	Pain Intensity - Child Faces Pain Scale-Revised (FPS-R) Remove
	Pain Intensity - Toddler Revised Face, Legs, Activity, Cry, Consolability (FLACC) Pain Tool Check all Current Age Add to Toolkit Remove
	Pain Interference - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Item Bank v1.1 - Pain Interference - Short Form 8a Remove
	Pain Interference - Child Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Item Bank v2.0 - Pain Interference - Short Form 8a Remove
	Pain Interference - Parent Proxy Patient-Reported Outcome Measurement Information System (PROMIS^®) Parent Proxy Item Bank v2.0 - Pain Interference - Short Form 8a Remove
	Sickle Cell Disease Pain Location Body Map - Adult Sickle Cell Pain Diary Check all Current Age Add to Toolkit Remove
	Pain Location Body Map - Child Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart Check all Current Age Add to Toolkit Remove
	Pain Quality Descriptors (Affective) - Children Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a Remove
	Pain Quality Descriptors (Sensory) - Children Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Sensory 8a Remove
	Pain Quality Descriptors (Nociceptive) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Nociceptive Pain Quality 5a Remove
	Pain Quality Descriptors (Neuropathic) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Neuropathic Pain Quality 5a Remove
	Patient Global Impression of Change Patient Global Impression of Change (PGIC) Remove
	Physical Mobility - Adult Patient-Reported Outcomes Measurement Information System^® (PROMIS) Item Bank v2.1 - Mobility Remove
	Physical Mobility - Child Patient-Reported Outcomes Measurement Information System^® (PROMIS) Pediatric Item Bank v2.0 - Mobility - Short Form 8a Remove
	Physical Mobility - Hospitalized Individuals Youth Acute Pain Functional Ability Questionnaire (YAPFAQ) Remove
	Aided and Confirmed Awareness of Televised Anti-tobacco Advertisements Sly, D., et al. The Florida "truth" anti-tobacco media evaluation: Design, first-year results, and implications for planning future state media evaluations. TOB CONTROL, 2001 Remove
	Compliance with Cigarette Packaging and Labeling Policies Point of Sale: Pack Analysis Coding Training Manual, 2013 Remove
	Perceived Effectiveness of Anti-Tobacco Advertising Perceived Effectiveness of Cessation Advertisements study Remove
	Social Norms about Tobacco - Adult Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 Remove
	Social Norms about Tobacco - Youth Population Assessment of Tobacco and Health (PATH) Study, Wave 7, Youth Survey Remove
	Local Tobacco Control Public Policies American Nonsmokers Rights Foundation (ANRF) U.S. Tobacco Control Laws Database, 2023 Remove
	Media Use Population Assessment of Tobacco and Health (PATH) Study [United States] Public-Use Files, Wave 6: Adult Questionnaire (English Version) Remove
	Neighborhood-level Racial/Ethnic Composition U.S. Census Bureau, Census 2020 Remove
	State Tobacco Control Public Policies State Tobacco Activities Tracking and Evaluation (STATE) System Remove
	Worksite Policies Nebraska Worksite Wellness Survey, 2016 Remove
	Youth Cigarette Purchase Behaviors and Experiences Monitoring the Future (MTF), 2022 Remove
	Interpersonal Communication about Cigarette Warning Labels Social Interactions Remove
	Self-reported Exposure to E-cigarettes and Other Tobacco Products on the Internet, Newspapers and Magazines, Physical Stores, TV/Streaming/Movies, and Social Media National Youth Tobacco Survey (NYTS), 2022 Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 132

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

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To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 April 15). Ethnicity and Race. https://www.phenxtoolkit.org/protocols/view/11901

PhenX Toolkit. (2026 April 15). Current Marital Status. https://www.phenxtoolkit.org/protocols/view/10903

PhenX Toolkit. (2026 April 15). Educational Attainment - Individual. https://www.phenxtoolkit.org/protocols/view/11002

PhenX Toolkit. (2026 April 15). Current Employment Status. https://www.phenxtoolkit.org/protocols/view/11301

PhenX Toolkit. (2026 April 15). Cigarette Nicotine Dependence. https://www.phenxtoolkit.org/protocols/view/31001

PhenX Toolkit. (2026 April 15). Electronic Nicotine Product Device Type. https://www.phenxtoolkit.org/protocols/view/760102

PhenX Toolkit. (2026 April 15). Current Age. https://www.phenxtoolkit.org/protocols/view/10102

PhenX Toolkit. (2026 April 15). Use of Tobacco Products. https://www.phenxtoolkit.org/protocols/view/741402

PhenX Toolkit. (2026 April 15). Behavior Economics/Purchase Behavior. https://www.phenxtoolkit.org/protocols/view/710401

PhenX Toolkit. (2026 April 15). Motivation to Quit - Single Item. https://www.phenxtoolkit.org/protocols/view/710501

PhenX Toolkit. (2026 April 15). Motivation to Quit - Multiple Item. https://www.phenxtoolkit.org/protocols/view/710502

PhenX Toolkit. (2026 April 15). Multigroup Ethnic Identity. https://www.phenxtoolkit.org/protocols/view/710801

PhenX Toolkit. (2026 April 15). Susceptibility to Tobacco Products. https://www.phenxtoolkit.org/protocols/view/710303

PhenX Toolkit. (2026 April 15). House Rules About Tobacco Use. https://www.phenxtoolkit.org/protocols/view/711102

PhenX Toolkit. (2026 April 15). Peer and Family Influence on Smoking. https://www.phenxtoolkit.org/protocols/view/710902

PhenX Toolkit. (2026 April 15). Quality of Life - Pediatric. https://www.phenxtoolkit.org/protocols/view/221301

PhenX Toolkit. (2026 April 15). Quality of Life - Adult. https://www.phenxtoolkit.org/protocols/view/221302

PhenX Toolkit. (2026 April 15). Quality of Care - Adults. https://www.phenxtoolkit.org/protocols/view/820101

PhenX Toolkit. (2026 April 15). Quality of Care - Children. https://www.phenxtoolkit.org/protocols/view/820102

PhenX Toolkit. (2026 April 15). Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). https://www.phenxtoolkit.org/protocols/view/820201

PhenX Toolkit. (2026 April 15). PedsQL Sickle Cell Disease Module. https://www.phenxtoolkit.org/protocols/view/820202

PhenX Toolkit. (2026 April 15). Self-efficacy in Sickle Cell Disease. https://www.phenxtoolkit.org/protocols/view/820401

PhenX Toolkit. (2026 April 15). Intelligence Scale - 16 to 90 years. https://www.phenxtoolkit.org/protocols/view/820501

PhenX Toolkit. (2026 April 15). Intelligence Scale - 2 years, 6 months to 7 years, 7 months. https://www.phenxtoolkit.org/protocols/view/820502

PhenX Toolkit. (2026 April 15). Intelligence Scale - 6 to 16 years 11 months. https://www.phenxtoolkit.org/protocols/view/820503

PhenX Toolkit. (2026 April 15). Intelligence Scale - Birth to 3.5 years. https://www.phenxtoolkit.org/protocols/view/820504

PhenX Toolkit. (2026 April 15). Adaptive Behavior/Adaptive Function. https://www.phenxtoolkit.org/protocols/view/820601

PhenX Toolkit. (2026 April 15). Stroke Impact Scale (SIS) - Adults. https://www.phenxtoolkit.org/protocols/view/820701

PhenX Toolkit. (2026 April 15). Recovery and Recurrence Questionnaire (RRQ) - Pediatrics. https://www.phenxtoolkit.org/protocols/view/820702

PhenX Toolkit. (2026 April 15). NIH Stroke Scale (NIHSS). https://www.phenxtoolkit.org/protocols/view/820801

PhenX Toolkit. (2026 April 15). Pediatric NIH Stroke Scale (PedNIHSS). https://www.phenxtoolkit.org/protocols/view/820802

PhenX Toolkit. (2026 April 15). Stroke Risk in Children with Sickle Cell Disease - TCD. https://www.phenxtoolkit.org/protocols/view/821001

PhenX Toolkit. (2026 April 15). Stroke Risk in Children with Sickle Cell Disease - TCDi. https://www.phenxtoolkit.org/protocols/view/821002

PhenX Toolkit. (2026 April 15). Sustained and Selective Attention. https://www.phenxtoolkit.org/protocols/view/821201

PhenX Toolkit. (2026 April 15). Pain. https://www.phenxtoolkit.org/protocols/view/170401

PhenX Toolkit. (2026 April 15). History of Stroke - Ischemic Infarction and Hemorrhage. https://www.phenxtoolkit.org/protocols/view/130301

PhenX Toolkit. (2026 April 15). Executive Function. https://www.phenxtoolkit.org/protocols/view/131101

PhenX Toolkit. (2026 April 15). Executive Function - Child. https://www.phenxtoolkit.org/protocols/view/131102

PhenX Toolkit. (2026 April 15). Migraine - Adult. https://www.phenxtoolkit.org/protocols/view/130501

PhenX Toolkit. (2026 April 15). Migraine - Children. https://www.phenxtoolkit.org/protocols/view/130502

PhenX Toolkit. (2026 April 15). Verbal Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130801

PhenX Toolkit. (2026 April 15). Verbal Memory - Child. https://www.phenxtoolkit.org/protocols/view/130802

PhenX Toolkit. (2026 April 15). Visual Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130901

PhenX Toolkit. (2026 April 15). Visual Memory - Child. https://www.phenxtoolkit.org/protocols/view/130902

PhenX Toolkit. (2026 April 15). Working Memory - Adult. https://www.phenxtoolkit.org/protocols/view/131001

PhenX Toolkit. (2026 April 15). Working Memory - Child. https://www.phenxtoolkit.org/protocols/view/131002

PhenX Toolkit. (2026 April 15). Motor and Attentional Impulsivity (Immediate and Delayed Memory Task). https://www.phenxtoolkit.org/protocols/view/530602

PhenX Toolkit. (2026 April 15). Health Quality Index for Economic Evaluations - Child and Adolescent. https://www.phenxtoolkit.org/protocols/view/560402

PhenX Toolkit. (2026 April 15). Health Quality Index for Economic Evaluations - Adult. https://www.phenxtoolkit.org/protocols/view/560403

PhenX Toolkit. (2026 April 15). Impairment - Adolescent. https://www.phenxtoolkit.org/protocols/view/610101

PhenX Toolkit. (2026 April 15). Impairment - Adult. https://www.phenxtoolkit.org/protocols/view/610102

PhenX Toolkit. (2026 April 15). Service Utilization and Cost. https://www.phenxtoolkit.org/protocols/view/560702

PhenX Toolkit. (2026 April 15). Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months. https://www.phenxtoolkit.org/protocols/view/510201

PhenX Toolkit. (2026 April 15). Screening and Severity of Substance Use Problems - Adolescents. https://www.phenxtoolkit.org/protocols/view/510202

PhenX Toolkit. (2026 April 15). Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime. https://www.phenxtoolkit.org/protocols/view/510203

PhenX Toolkit. (2026 April 15). Screening and Severity of Substance Use Problems - Adults - Drugs. https://www.phenxtoolkit.org/protocols/view/510204

PhenX Toolkit. (2026 April 15). Alcohol - 30-Day Quantity and Frequency. https://www.phenxtoolkit.org/protocols/view/30301

PhenX Toolkit. (2026 April 15). Substances - 30-Day Frequency. https://www.phenxtoolkit.org/protocols/view/31302

PhenX Toolkit. (2026 April 15). Quality of Life Enjoyment and Satisfaction - Adult. https://www.phenxtoolkit.org/protocols/view/180302

PhenX Toolkit. (2026 April 15). Quality of Life Enjoyment and Satisfaction - Children. https://www.phenxtoolkit.org/protocols/view/180303

PhenX Toolkit. (2026 April 15). Short Form-McGill Pain Questionnaire-2 (SF-MPQ-2). https://www.phenxtoolkit.org/protocols/view/190901

PhenX Toolkit. (2026 April 15). Adolescent Pediatric Pain Tool (APPT). https://www.phenxtoolkit.org/protocols/view/190902

PhenX Toolkit. (2026 April 15). Physical, Social, and Mental Health Functioning (SF-36V2). https://www.phenxtoolkit.org/protocols/view/191201

PhenX Toolkit. (2026 April 15). Height - Knee Height. https://www.phenxtoolkit.org/protocols/view/20701

PhenX Toolkit. (2026 April 15). Pulse Oximetry (Rest). https://www.phenxtoolkit.org/protocols/view/91102

PhenX Toolkit. (2026 April 15). Hemoglobin Characterization. https://www.phenxtoolkit.org/protocols/view/830302

PhenX Toolkit. (2026 April 15). Complete Blood Count (CBC). https://www.phenxtoolkit.org/protocols/view/220501

PhenX Toolkit. (2026 April 15). Height - Self-Reported Height. https://www.phenxtoolkit.org/protocols/view/20707

PhenX Toolkit. (2026 April 15). Weight - Measured Weight. https://www.phenxtoolkit.org/protocols/view/21503

PhenX Toolkit. (2026 April 15). Weight - Self-Reported Weight. https://www.phenxtoolkit.org/protocols/view/21504

PhenX Toolkit. (2026 April 15). Height - Recumbent Length. https://www.phenxtoolkit.org/protocols/view/20705

PhenX Toolkit. (2026 April 15). Height - Standing Height. https://www.phenxtoolkit.org/protocols/view/20706

PhenX Toolkit. (2026 April 15). Birthplace. https://www.phenxtoolkit.org/protocols/view/10201

PhenX Toolkit. (2026 April 15). English Proficiency. https://www.phenxtoolkit.org/protocols/view/270201

PhenX Toolkit. (2026 April 15). Occupational Prestige. https://www.phenxtoolkit.org/protocols/view/270501

PhenX Toolkit. (2026 April 15). Food Insecurity. https://www.phenxtoolkit.org/protocols/view/270301

PhenX Toolkit. (2026 April 15). Health Insurance Coverage. https://www.phenxtoolkit.org/protocols/view/11502

PhenX Toolkit. (2026 April 15). Access to Health Services. https://www.phenxtoolkit.org/protocols/view/270101

PhenX Toolkit. (2026 April 15). Sexual Orientation. https://www.phenxtoolkit.org/protocols/view/11701

PhenX Toolkit. (2026 April 15). Current Address. https://www.phenxtoolkit.org/protocols/view/10802

PhenX Toolkit. (2026 April 15). Self-Reported General Health Status. https://www.phenxtoolkit.org/protocols/view/770101

PhenX Toolkit. (2026 April 15). Annual Household Family Income and Number of People Supported. https://www.phenxtoolkit.org/protocols/view/12001

PhenX Toolkit. (2026 April 15). Health Literacy. https://www.phenxtoolkit.org/protocols/view/270402

PhenX Toolkit. (2026 April 15). Air Quality Index. https://www.phenxtoolkit.org/protocols/view/290101

PhenX Toolkit. (2026 April 15). Concentrated Poverty. https://www.phenxtoolkit.org/protocols/view/290201

PhenX Toolkit. (2026 April 15). Educational Attainment - Community. https://www.phenxtoolkit.org/protocols/view/290301

PhenX Toolkit. (2026 April 15). Environmental Justice. https://www.phenxtoolkit.org/protocols/view/290401

PhenX Toolkit. (2026 April 15). Food Swamp. https://www.phenxtoolkit.org/protocols/view/290501

PhenX Toolkit. (2026 April 15). Percent Unionized for Non-Agricultural Labor Force. https://www.phenxtoolkit.org/protocols/view/290601

PhenX Toolkit. (2026 April 15). Race/Ethnic Residential Segregation - U.S. Census. https://www.phenxtoolkit.org/protocols/view/211402

PhenX Toolkit. (2026 April 15). Race/Ethnic Residential Segregation - American Community Survey. https://www.phenxtoolkit.org/protocols/view/211403

PhenX Toolkit. (2026 April 15). Race/Ethnic Residential Segregation - Separation (S) Index, Unbiased. https://www.phenxtoolkit.org/protocols/view/211404

PhenX Toolkit. (2026 April 15). Social Vulnerability. https://www.phenxtoolkit.org/protocols/view/290701

PhenX Toolkit. (2026 April 15). Residential Concentrations of Income. https://www.phenxtoolkit.org/protocols/view/290801

PhenX Toolkit. (2026 April 15). Minimum Wage. https://www.phenxtoolkit.org/protocols/view/290901

PhenX Toolkit. (2026 April 15). Neighborhood Walking and Biking Environment. https://www.phenxtoolkit.org/protocols/view/291001

PhenX Toolkit. (2026 April 15). Water Access and Sanitation. https://www.phenxtoolkit.org/protocols/view/291101

PhenX Toolkit. (2026 April 15). Sickle Cell Pain Burden Interview. https://www.phenxtoolkit.org/protocols/view/860101

PhenX Toolkit. (2026 April 15). Pain Catastrophizing - Adult. https://www.phenxtoolkit.org/protocols/view/860201

PhenX Toolkit. (2026 April 15). Pain Catastrophizing - Child. https://www.phenxtoolkit.org/protocols/view/860202

PhenX Toolkit. (2026 April 15). Pain Catastrophizing - Parent Proxy. https://www.phenxtoolkit.org/protocols/view/860203

PhenX Toolkit. (2026 April 15). Pain Coping - Adult. https://www.phenxtoolkit.org/protocols/view/860301

PhenX Toolkit. (2026 April 15). Pain Coping - Child. https://www.phenxtoolkit.org/protocols/view/860302

PhenX Toolkit. (2026 April 15). Pain Intensity - Adolescent and Adult. https://www.phenxtoolkit.org/protocols/view/860401

PhenX Toolkit. (2026 April 15). Pain Intensity - Child. https://www.phenxtoolkit.org/protocols/view/860402

PhenX Toolkit. (2026 April 15). Pain Intensity - Toddler. https://www.phenxtoolkit.org/protocols/view/860403

PhenX Toolkit. (2026 April 15). Pain Interference - Adult. https://www.phenxtoolkit.org/protocols/view/860501

PhenX Toolkit. (2026 April 15). Pain Interference - Child. https://www.phenxtoolkit.org/protocols/view/860502

PhenX Toolkit. (2026 April 15). Pain Interference - Parent Proxy. https://www.phenxtoolkit.org/protocols/view/860503

PhenX Toolkit. (2026 April 15). Sickle Cell Disease Pain Location Body Map - Adult. https://www.phenxtoolkit.org/protocols/view/860601

PhenX Toolkit. (2026 April 15). Pain Location Body Map - Child. https://www.phenxtoolkit.org/protocols/view/860602

PhenX Toolkit. (2026 April 15). Pain Quality Descriptors (Affective) - Children. https://www.phenxtoolkit.org/protocols/view/860701

PhenX Toolkit. (2026 April 15). Pain Quality Descriptors (Sensory) - Children. https://www.phenxtoolkit.org/protocols/view/860702

PhenX Toolkit. (2026 April 15). Pain Quality Descriptors (Nociceptive) - Adult. https://www.phenxtoolkit.org/protocols/view/860703

PhenX Toolkit. (2026 April 15). Pain Quality Descriptors (Neuropathic) - Adult. https://www.phenxtoolkit.org/protocols/view/860704

PhenX Toolkit. (2026 April 15). Patient Global Impression of Change. https://www.phenxtoolkit.org/protocols/view/860801

PhenX Toolkit. (2026 April 15). Physical Mobility - Adult. https://www.phenxtoolkit.org/protocols/view/860901

PhenX Toolkit. (2026 April 15). Physical Mobility - Child. https://www.phenxtoolkit.org/protocols/view/860902

PhenX Toolkit. (2026 April 15). Physical Mobility - Hospitalized Individuals. https://www.phenxtoolkit.org/protocols/view/860903

PhenX Toolkit. (2026 April 15). Aided and Confirmed Awareness of Televised Anti-tobacco Advertisements. https://www.phenxtoolkit.org/protocols/view/750101

PhenX Toolkit. (2026 April 15). Compliance with Cigarette Packaging and Labeling Policies. https://www.phenxtoolkit.org/protocols/view/750201

PhenX Toolkit. (2026 April 15). Perceived Effectiveness of Anti-Tobacco Advertising. https://www.phenxtoolkit.org/protocols/view/750901

PhenX Toolkit. (2026 April 15). Social Norms about Tobacco - Adult. https://www.phenxtoolkit.org/protocols/view/750303

PhenX Toolkit. (2026 April 15). Social Norms about Tobacco - Youth. https://www.phenxtoolkit.org/protocols/view/750304

PhenX Toolkit. (2026 April 15). Local Tobacco Control Public Policies. https://www.phenxtoolkit.org/protocols/view/750602

PhenX Toolkit. (2026 April 15). Media Use. https://www.phenxtoolkit.org/protocols/view/750702

PhenX Toolkit. (2026 April 15). Neighborhood-level Racial/Ethnic Composition. https://www.phenxtoolkit.org/protocols/view/750802

PhenX Toolkit. (2026 April 15). State Tobacco Control Public Policies. https://www.phenxtoolkit.org/protocols/view/751202

PhenX Toolkit. (2026 April 15). Worksite Policies. https://www.phenxtoolkit.org/protocols/view/751402

PhenX Toolkit. (2026 April 15). Youth Cigarette Purchase Behaviors and Experiences. https://www.phenxtoolkit.org/protocols/view/751502

PhenX Toolkit. (2026 April 15). Interpersonal Communication about Cigarette Warning Labels. https://www.phenxtoolkit.org/protocols/view/750502

PhenX Toolkit. (2026 April 15). Self-reported Exposure to E-cigarettes and Other Tobacco Products on the Internet, Newspapers and Magazines, Physical Stores, TV/Streaming/Movies, and Social Media. https://www.phenxtoolkit.org/protocols/view/751601

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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