My Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

Select All Remove Selected

Basic Report
Detailed Report
Protocol in PDF
Protocol in Español
Protocol in 中文
DCW in Word Format
DCW in Español
DCW in 中文
DD in RTF Format
DD in CSV Format
DD in REDCap Format

Empty My Toolkit

Essential Protocols

Total Protocols in My Toolkit: 62
	Antipsychotic Medication Adherence Brief Adherence Rating Scale (BARS) Check all Current Age Add to Toolkit Remove
	Antipsychotic Medication Extrapyramidal Side Effects Extrapyramidal Symptom Rating Scale (ESRS) Check all Current Age Add to Toolkit Remove
	Clinician-Administered Psychiatric Assessment Structured Clinical Interview for DSM-5 Disorders - Clinician Version (SCID-5-CV) Check all Current Age Add to Toolkit Remove
	Family Burden of Mental Illness Burden Assessment Scale (BAS) Check all Current Age Add to Toolkit Remove
	Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia Family Questionnaire (FQ) Check all Current Age Add to Toolkit Remove
	Family Functioning - Systematic Clinical Outcome Routine Evaluation Systematic Clinical Outcome Routine Evaluation (SCORE-15) Index of Family Functioning and Change Check all Current Age Add to Toolkit Remove
	Family History - Multiple Mental Disorders National Institute of Mental Health (NIMH), Family Interview for Genetic Studies (FIGS), 1999 Remove
	Family History - Psychosis Family Interview for Genetic Studies (FIGS) - Abbreviated Version Remove
	Global Psychopathology Rating Scale - Research Positive and Negative Syndrome Scale (PANSS) Check all Current Age Current Marital Status Add to Toolkit Remove
	Global Psychopathology Rating Scale - Clinical Brief Psychiatric Rating Scale Check all Current Age Current Marital Status Add to Toolkit Remove
	Incarceration - Adolescents The CollaboRATE questionnaire Check all Current Age Add to Toolkit Remove
	Incarceration - Adult National Survey on Drug Use and Health (NSDUH), 2014 Check all Current Age Add to Toolkit Remove
	Mental Health Services Satisfaction Mental Health Statics Improvement Program (MHSIP), Youth Services Survey (YSS) Check all Current Age Add to Toolkit Remove
	Multi-dimensional Assessment of Antipsychotic Medication Side Effects Glasgow Antipsychotic Side-effect Scale (GASS) Check all Current Age Add to Toolkit Remove
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator Recovery Self-Assessment (RSA) - Administrator Version Check all Current Age Add to Toolkit Remove
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member Recovery Self-Assessment (RSA) - Family Member Check all Current Age Add to Toolkit Remove
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version Recovery Self-Assessment (RSA) Check all Current Age Add to Toolkit Remove
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version Recovery Self-Assessment (RSA) - Provider version Check all Current Age Add to Toolkit Remove
	Personal Well-being Index - Adult International Wellbeing Group, Personal Wellbeing Index-Adult (PWI-A) (5th Ed.), 2013 Check all Current Age Add to Toolkit Remove
	Personal Well-being index - Child Personal Wellbeing Index-School Children (PWI-SC) Check all Current Age Add to Toolkit Remove
	Physical Activity International Physical Activity Questionnaire (IPAQ-7) Check all Current Age Add to Toolkit Remove
	Premorbid Adjustment in Psychosis Modified Cannon-Spoor Premorbid Adjustment Scale (PAS) Check all Current Age Add to Toolkit Remove
	Psychiatric Symptoms - Frequency Modified Colorado Symptom Index (CSI) Check all Current Age Add to Toolkit Remove
	Psychosis Recovery Assessment Questionnaire about the Process of Recovery (QPR) Check all Current Age Add to Toolkit Remove
	Shared Decision Making in Clinical Encounters CollaboRATE Check all Current Age Add to Toolkit Remove
	Social and Role Dysfunction in Psychosis and Schizophrenia Cornblatt, B.A., et al. Preliminary findings for two new measures of social and role functioning in the prodromal phase of schizophrenia. Schizophr. Bull., 2007 Check all Current Age Add to Toolkit Remove
	Alcohol - Treatment for Alcohol Usage National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Alcohol - Lifetime Use Add to Toolkit Remove
	Body Mass Index National Health and Nutrition Examination Survey (NHANES), Anthropometrics procedure manual, 2007-2008 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	COVID-19 Knowledge, Attitudes, and Avoidant Behaviors Coronavirus Tracking Survey of the Understanding America Survey (UAS) Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Add to Toolkit Remove
	COVID-19 Related Social Distancing Experiences All of Us COVID-19 Participant Experience Survey (COPE) Check all Household Roster-Relationships Add to Toolkit Remove
	COVID-19 Related Social Interactions Coping with COVID-19: Impact on technology use, mobility, food security, depression and social isolation Check all Current Age Add to Toolkit Remove
	Injection Drug Use National Health and Nutrition Examination Survey (NHANES), 2007-2008, Drugs Use Questionnaire Remove
	Substances - Lifetime Use National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Current Age Add to Toolkit Remove
	Treatment Availability and Level of Care Treatment Episode Data Set - Admissions (TEDS-A) Check all Current Address Add to Toolkit Remove
	Use of Personal Protective Equipment (PPE) by Healthcare Workers HERO Registry Protective Equipment Survey Check all Current Age Current Employment Status Add to Toolkit Remove
	Use of Tobacco Products Population Assessment of Tobacco and Health (PATH) Study, Wave 7 Adult Survey Instrument Remove
	Substance Use Disorder - Past Year - Drugs National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Alcohol - Lifetime Use Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Current Age Substances - Lifetime Use Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Screener Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Memory Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Neurology Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form) Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form) Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Respiratory Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form) Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form) Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Allergies Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Skin and Hair Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form) Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form) Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Genitourinary Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Muscle and Joint Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Tooth Pain Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Pediatric Long COVID in Children and Young People (The CLoCk Study) Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Daily Living Sequelae in Adults at 6 Months After COVID-19 Infection Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Physical Functioning Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Current Quality of Life - Child Long COVID in Children and Young People (The CLoCk Study) Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Comorbidities and COVID-19 Impact Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Multisystem Inflammatory Syndrome - Child Global COVID-19 Clinical Platform: Case Report Form for Suspected Cases of Multisystem Inflammatory Syndrome (MIS) in Children and Adolescents Temporally Related to COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
Total Protocols in My Toolkit: 62

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 February 24). Antipsychotic Medication Adherence. https://www.phenxtoolkit.org/protocols/view/661801

PhenX Toolkit. (2026 February 24). Antipsychotic Medication Extrapyramidal Side Effects. https://www.phenxtoolkit.org/protocols/view/661601

PhenX Toolkit. (2026 February 24). Clinician-Administered Psychiatric Assessment. https://www.phenxtoolkit.org/protocols/view/662501

PhenX Toolkit. (2026 February 24). Family Burden of Mental Illness. https://www.phenxtoolkit.org/protocols/view/662201

PhenX Toolkit. (2026 February 24). Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia. https://www.phenxtoolkit.org/protocols/view/662001

PhenX Toolkit. (2026 February 24). Family Functioning - Systematic Clinical Outcome Routine Evaluation. https://www.phenxtoolkit.org/protocols/view/662102

PhenX Toolkit. (2026 February 24). Family History - Multiple Mental Disorders. https://www.phenxtoolkit.org/protocols/view/660701

PhenX Toolkit. (2026 February 24). Family History - Psychosis. https://www.phenxtoolkit.org/protocols/view/660702

PhenX Toolkit. (2026 February 24). Global Psychopathology Rating Scale - Research. https://www.phenxtoolkit.org/protocols/view/122101

PhenX Toolkit. (2026 February 24). Global Psychopathology Rating Scale - Clinical. https://www.phenxtoolkit.org/protocols/view/122102

PhenX Toolkit. (2026 February 24). Incarceration - Adolescents. https://www.phenxtoolkit.org/protocols/view/662401

PhenX Toolkit. (2026 February 24). Incarceration - Adult. https://www.phenxtoolkit.org/protocols/view/662402

PhenX Toolkit. (2026 February 24). Mental Health Services Satisfaction. https://www.phenxtoolkit.org/protocols/view/661401

PhenX Toolkit. (2026 February 24). Multi-dimensional Assessment of Antipsychotic Medication Side Effects. https://www.phenxtoolkit.org/protocols/view/661701

PhenX Toolkit. (2026 February 24). Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator. https://www.phenxtoolkit.org/protocols/view/661501

PhenX Toolkit. (2026 February 24). Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member. https://www.phenxtoolkit.org/protocols/view/661502

PhenX Toolkit. (2026 February 24). Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version. https://www.phenxtoolkit.org/protocols/view/661503

PhenX Toolkit. (2026 February 24). Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version. https://www.phenxtoolkit.org/protocols/view/661504

PhenX Toolkit. (2026 February 24). Personal Well-being Index - Adult. https://www.phenxtoolkit.org/protocols/view/661301

PhenX Toolkit. (2026 February 24). Personal Well-being index - Child. https://www.phenxtoolkit.org/protocols/view/661302

PhenX Toolkit. (2026 February 24). Physical Activity. https://www.phenxtoolkit.org/protocols/view/661901

PhenX Toolkit. (2026 February 24). Premorbid Adjustment in Psychosis. https://www.phenxtoolkit.org/protocols/view/660801

PhenX Toolkit. (2026 February 24). Psychiatric Symptoms - Frequency. https://www.phenxtoolkit.org/protocols/view/660901

PhenX Toolkit. (2026 February 24). Psychosis Recovery Assessment. https://www.phenxtoolkit.org/protocols/view/661101

PhenX Toolkit. (2026 February 24). Shared Decision Making in Clinical Encounters. https://www.phenxtoolkit.org/protocols/view/662301

PhenX Toolkit. (2026 February 24). Social and Role Dysfunction in Psychosis and Schizophrenia. https://www.phenxtoolkit.org/protocols/view/661201

PhenX Toolkit. (2026 February 24). Alcohol - Treatment for Alcohol Usage. https://www.phenxtoolkit.org/protocols/view/31501

PhenX Toolkit. (2026 February 24). Body Mass Index. https://www.phenxtoolkit.org/protocols/view/570101

PhenX Toolkit. (2026 February 24). COVID-19 Knowledge, Attitudes, and Avoidant Behaviors. https://www.phenxtoolkit.org/protocols/view/930401

PhenX Toolkit. (2026 February 24). COVID-19 Related Social Distancing Experiences. https://www.phenxtoolkit.org/protocols/view/930101

PhenX Toolkit. (2026 February 24). COVID-19 Related Social Interactions. https://www.phenxtoolkit.org/protocols/view/930201

PhenX Toolkit. (2026 February 24). Injection Drug Use. https://www.phenxtoolkit.org/protocols/view/161101

PhenX Toolkit. (2026 February 24). Substances - Lifetime Use. https://www.phenxtoolkit.org/protocols/view/31102

PhenX Toolkit. (2026 February 24). Treatment Availability and Level of Care. https://www.phenxtoolkit.org/protocols/view/550501

PhenX Toolkit. (2026 February 24). Use of Personal Protective Equipment (PPE) by Healthcare Workers. https://www.phenxtoolkit.org/protocols/view/930301

PhenX Toolkit. (2026 February 24). Use of Tobacco Products. https://www.phenxtoolkit.org/protocols/view/741402

PhenX Toolkit. (2026 February 24). Substance Use Disorder - Past Year - Drugs. https://www.phenxtoolkit.org/protocols/view/511803

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Screener. https://www.phenxtoolkit.org/protocols/view/992001

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Memory. https://www.phenxtoolkit.org/protocols/view/992002

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Neurology. https://www.phenxtoolkit.org/protocols/view/992003

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors. https://www.phenxtoolkit.org/protocols/view/992004

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing. https://www.phenxtoolkit.org/protocols/view/992005

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form). https://www.phenxtoolkit.org/protocols/view/992006

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form). https://www.phenxtoolkit.org/protocols/view/992007

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular. https://www.phenxtoolkit.org/protocols/view/992008

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course. https://www.phenxtoolkit.org/protocols/view/992009

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Respiratory. https://www.phenxtoolkit.org/protocols/view/992010

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form). https://www.phenxtoolkit.org/protocols/view/992011

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form). https://www.phenxtoolkit.org/protocols/view/992012

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Allergies. https://www.phenxtoolkit.org/protocols/view/992013

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Skin and Hair. https://www.phenxtoolkit.org/protocols/view/992014

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form). https://www.phenxtoolkit.org/protocols/view/992015

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form). https://www.phenxtoolkit.org/protocols/view/992016

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Genitourinary. https://www.phenxtoolkit.org/protocols/view/992017

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Muscle and Joint. https://www.phenxtoolkit.org/protocols/view/992018

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Tooth Pain. https://www.phenxtoolkit.org/protocols/view/992019

PhenX Toolkit. (2026 February 24). Long COVID - Symptoms Due to COVID-19 - Pediatric. https://www.phenxtoolkit.org/protocols/view/992020

PhenX Toolkit. (2026 February 24). Long COVID - Daily Living. https://www.phenxtoolkit.org/protocols/view/992101

PhenX Toolkit. (2026 February 24). Long COVID - Physical Functioning. https://www.phenxtoolkit.org/protocols/view/992201

PhenX Toolkit. (2026 February 24). Long COVID - Current Quality of Life - Child. https://www.phenxtoolkit.org/protocols/view/992301

PhenX Toolkit. (2026 February 24). Long COVID - Comorbidities and COVID-19 Impact. https://www.phenxtoolkit.org/protocols/view/992401

PhenX Toolkit. (2026 February 24). Long COVID - Multisystem Inflammatory Syndrome - Child. https://www.phenxtoolkit.org/protocols/view/992501

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

Share This Toolkit

Name Toolkit

Enter the name you wish to give the toolkit below.

Customized Email Note

Enter a customized note to send to any new users you share this toolkit with. Users who already have access to this saved toolkit will not receive a new email.

User List

Press add and then enter the email address of anyone you wish to share this toolkit with.