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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 62
	Ethnicity and Race U.S. Census Bureau, Census 2020, Questionnaire Remove
	Educational Attainment - Individual National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020 Remove
	Current Marital Status Behavioral Risk Factor Surveillance System (BRFSS), Core Section 8: Demographics, 2018 Check all Current Age Add to Toolkit Remove
	Impairment - Adolescent The Columbia Impairment Scale (CIS) Remove
	Impairment - Adult The World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) Remove
	Broad Psychopathology - Adult The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) Check all Current Age Add to Toolkit Remove
	Broad Psychopathology - Child The Strengths and Difficulties Questionnaire (SDQ) Check all Current Age Add to Toolkit Remove
	Child-Reported Parental Education Attainment National Longitudinal Study on Adolescent Health (Add Health), 1995 Check all Current Age Add to Toolkit Remove
	Current Age National Health and Nutrition Examination Survey (NHANES), 2019-2020 Remove
	Annual Household Family Income and Number of People Supported All of Us Research Program, Participant Provided Information (PPI), 2017 and Hispanic Community Health Study / Study of Latinos (HCHS/SOL) Check all Current Age Household Roster-Relationships Add to Toolkit Remove
	Antipsychotic Medication Adherence Brief Adherence Rating Scale (BARS) Check all Current Age Add to Toolkit Remove
	Antipsychotic Medication Extrapyramidal Side Effects Extrapyramidal Symptom Rating Scale (ESRS) Check all Current Age Add to Toolkit Remove
	Clinician-Administered Psychiatric Assessment Structured Clinical Interview for DSM-5 Disorders - Clinician Version (SCID-5-CV) Check all Current Age Add to Toolkit Remove
	Family Burden of Mental Illness Burden Assessment Scale (BAS) Check all Current Age Add to Toolkit Remove
	Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia Family Questionnaire (FQ) Check all Current Age Add to Toolkit Remove
	Family Functioning - Systematic Clinical Outcome Routine Evaluation Systematic Clinical Outcome Routine Evaluation (SCORE-15) Index of Family Functioning and Change Check all Current Age Add to Toolkit Remove
	Family History - Multiple Mental Disorders National Institute of Mental Health (NIMH), Family Interview for Genetic Studies (FIGS), 1999 Remove
	Family History - Psychosis Family Interview for Genetic Studies (FIGS) - Abbreviated Version Remove
	Global Psychopathology Rating Scale - Research Positive and Negative Syndrome Scale (PANSS) Check all Current Age Current Marital Status Add to Toolkit Remove
	Global Psychopathology Rating Scale - Clinical Brief Psychiatric Rating Scale Check all Current Age Current Marital Status Add to Toolkit Remove
	Incarceration - Adolescents The CollaboRATE questionnaire Check all Current Age Add to Toolkit Remove
	Incarceration - Adult National Survey on Drug Use and Health (NSDUH), 2014 Check all Current Age Add to Toolkit Remove
	Mental Health Services Satisfaction Mental Health Statics Improvement Program (MHSIP), Youth Services Survey (YSS) Check all Current Age Add to Toolkit Remove
	Multi-dimensional Assessment of Antipsychotic Medication Side Effects Glasgow Antipsychotic Side-effect Scale (GASS) Check all Current Age Add to Toolkit Remove
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator Recovery Self-Assessment (RSA) - Administrator Version Check all Current Age Add to Toolkit Remove
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member Recovery Self-Assessment (RSA) - Family Member Check all Current Age Add to Toolkit Remove
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version Recovery Self-Assessment (RSA) Check all Current Age Add to Toolkit Remove
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version Recovery Self-Assessment (RSA) - Provider version Check all Current Age Add to Toolkit Remove
	Personal Well-being Index - Adult International Wellbeing Group, Personal Wellbeing Index-Adult (PWI-A) (5th Ed.), 2013 Check all Current Age Add to Toolkit Remove
	Personal Well-being index - Child Personal Wellbeing Index-School Children (PWI-SC) Check all Current Age Add to Toolkit Remove
	Physical Activity International Physical Activity Questionnaire (IPAQ-7) Check all Current Age Add to Toolkit Remove
	Premorbid Adjustment in Psychosis Modified Cannon-Spoor Premorbid Adjustment Scale (PAS) Check all Current Age Add to Toolkit Remove
	Psychiatric Symptoms - Frequency Modified Colorado Symptom Index (CSI) Check all Current Age Add to Toolkit Remove
	Psychosis Recovery Assessment Questionnaire about the Process of Recovery (QPR) Check all Current Age Add to Toolkit Remove
	Shared Decision Making in Clinical Encounters CollaboRATE Check all Current Age Add to Toolkit Remove
	Social and Role Dysfunction in Psychosis and Schizophrenia Cornblatt, B.A., et al. Preliminary findings for two new measures of social and role functioning in the prodromal phase of schizophrenia. Schizophr. Bull., 2007 Check all Current Age Add to Toolkit Remove
	Eating Disorder Screener for DSM-IV Diagnostic and Statistical Manual of Mental Disorders (DSM-IV), The Eating Disorder Diagnostic Scale (EDDS) Check all Body Image Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Eating Disorder Screener for DSM-5 Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) & The Eating Disorder Diagnostic Scale (EDDS-5) Check all Body Image Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Eating Disorders Examination - Child Interview Eating Disorder Examination © (EDE) Interview for Children, Edition 16.0D Check all Current Age Add to Toolkit Remove
	Eating Disorders Examination - Adult Interview Eating Disorder Examination © (EDE), Edition 16.0D Check all Current Age Add to Toolkit Remove
	Eating Disorders Examination - Bariatric Surgery Interview Eating Disorder Examination © (EDE), 14th edition, version 14.3, Bariatric Surgery Version (EDE-BSV) Check all Current Age Add to Toolkit Remove
	Eating Disorders Examination- Questionnaire Eating Disorders Examination Questionnaire © (EDE-Q) Check all Current Age Add to Toolkit Remove
	Sensitivity to Reward and Punishment - Adolescent and Adult Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale Check all Current Age Add to Toolkit Remove
	Sensitivity to Reward and Punishment - Child Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale - child version Check all Current Age Add to Toolkit Remove
	Sensitivity to Punishment/Sensitivity to Reward Questionnaire (SPSRQ) Sensitivity to Punishment/Sensitivity to Reward Questionnaire (SPSRQ) Check all Current Age Add to Toolkit Remove
	Exercise Dependence Scale The Exercise Dependence Scale Check all Current Age Add to Toolkit Remove
	Child Eating Behavior Questionnaire (CEBQ) The Child Eating Behavior Questionnaire (CEBQ) Check all Current Age Add to Toolkit Remove
	Brain-Body Center Sensory Scales (BBCSS) The Brain-Body Center Sensory Scales (BBCSS) Check all Current Age Add to Toolkit Remove
	Positive and Negative Perfectionism Scale The Positive and Negative Perfectionism Scale (PNPS) Check all Current Age Add to Toolkit Remove
	Intolerance of Uncertainty Scale (IUS) The Intolerance of Uncertainty Scale (IUS) Check all Current Age Add to Toolkit Remove
	Temperament and Character Inventory (TCI) Temperament and Character Inventory (TCI), Harm subscale Check all Current Age Add to Toolkit Remove
	Toronto Alexithymia Scale (TAS-20) The Toronto Alexithymia Scale (TAS-20) Check all Current Age Add to Toolkit Remove
	Eating Disorder Assessment for DSM-5 (EDA-5) The Eating Disorder Assessment for DSM-5 (EDA-5) Check all Current Age Add to Toolkit Remove
	Questionnaire on Eating and Weight Patterns - Adult The Questionnaire of Eating and Weight Patterns-5 (QEWP-5)© Check all Current Age Add to Toolkit Remove
	Questionnaire on Eating and Weight Patterns - Child The Questionnaire on Eating and Weight Patterns (QEWP-C-5) Check all Current Age Add to Toolkit Remove
	Auditory Continuous Performance Test (ACPT) Battery Auditory Continuous Performance Test (ACPT) Battery Check all Current Age Add to Toolkit Remove
	Three-Dimensional (3D) Magnetization-Prepared RApid Gradient Echo (MP-RAGE) Three-Dimensional (3D) Magnetization-Prepared RApid Gradient Echo (MP-RAGE) Remove
	Brain Connectivity and Activation Ragland, J.D., et al. Functional and neuroanatomic specificity of episodic memory dysfunction in schizophrenia: A functional magnetic resonance imaging study of the relational and item-specific encoding task. JAMA Psychiatry, 2015 Check all AX-Continuous Performance Test (AX-CPT) Current Age Relational and Item-Specific Encoding Task (RiSE) Add to Toolkit Remove
	AX-Continuous Performance Test (AX-CPT) Modified AX-Continuous Performance Test (AX-CPT) Remove
	C-Reactive Protein (CRP) National Health and Nutrition Examination Survey (NHANES), C-Reactive Protein (CRP), 2009-2010 Check all Current Age Add to Toolkit Remove
	Computerized Neurocognitive Battery (CNB) Computerized Neurocognitive Battery (CNB) Check all Current Age Educational Attainment - Individual Add to Toolkit Remove
	Relational and Item-Specific Encoding Task (RiSE) Relational and Item-Specific Encoding Task (RiSE) Remove
Total Protocols in My Toolkit: 62

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 April 15). Ethnicity and Race. https://www.phenxtoolkit.org/protocols/view/11901

PhenX Toolkit. (2026 April 15). Educational Attainment - Individual. https://www.phenxtoolkit.org/protocols/view/11002

PhenX Toolkit. (2026 April 15). Current Marital Status. https://www.phenxtoolkit.org/protocols/view/10903

PhenX Toolkit. (2026 April 15). Impairment - Adolescent. https://www.phenxtoolkit.org/protocols/view/610101

PhenX Toolkit. (2026 April 15). Impairment - Adult. https://www.phenxtoolkit.org/protocols/view/610102

PhenX Toolkit. (2026 April 15). Broad Psychopathology - Adult. https://www.phenxtoolkit.org/protocols/view/610201

PhenX Toolkit. (2026 April 15). Broad Psychopathology - Child. https://www.phenxtoolkit.org/protocols/view/610202

PhenX Toolkit. (2026 April 15). Child-Reported Parental Education Attainment. https://www.phenxtoolkit.org/protocols/view/210201

PhenX Toolkit. (2026 April 15). Current Age. https://www.phenxtoolkit.org/protocols/view/10102

PhenX Toolkit. (2026 April 15). Annual Household Family Income and Number of People Supported. https://www.phenxtoolkit.org/protocols/view/12001

PhenX Toolkit. (2026 April 15). Antipsychotic Medication Adherence. https://www.phenxtoolkit.org/protocols/view/661801

PhenX Toolkit. (2026 April 15). Antipsychotic Medication Extrapyramidal Side Effects. https://www.phenxtoolkit.org/protocols/view/661601

PhenX Toolkit. (2026 April 15). Clinician-Administered Psychiatric Assessment. https://www.phenxtoolkit.org/protocols/view/662501

PhenX Toolkit. (2026 April 15). Family Burden of Mental Illness. https://www.phenxtoolkit.org/protocols/view/662201

PhenX Toolkit. (2026 April 15). Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia. https://www.phenxtoolkit.org/protocols/view/662001

PhenX Toolkit. (2026 April 15). Family Functioning - Systematic Clinical Outcome Routine Evaluation. https://www.phenxtoolkit.org/protocols/view/662102

PhenX Toolkit. (2026 April 15). Family History - Multiple Mental Disorders. https://www.phenxtoolkit.org/protocols/view/660701

PhenX Toolkit. (2026 April 15). Family History - Psychosis. https://www.phenxtoolkit.org/protocols/view/660702

PhenX Toolkit. (2026 April 15). Global Psychopathology Rating Scale - Research. https://www.phenxtoolkit.org/protocols/view/122101

PhenX Toolkit. (2026 April 15). Global Psychopathology Rating Scale - Clinical. https://www.phenxtoolkit.org/protocols/view/122102

PhenX Toolkit. (2026 April 15). Incarceration - Adolescents. https://www.phenxtoolkit.org/protocols/view/662401

PhenX Toolkit. (2026 April 15). Incarceration - Adult. https://www.phenxtoolkit.org/protocols/view/662402

PhenX Toolkit. (2026 April 15). Mental Health Services Satisfaction. https://www.phenxtoolkit.org/protocols/view/661401

PhenX Toolkit. (2026 April 15). Multi-dimensional Assessment of Antipsychotic Medication Side Effects. https://www.phenxtoolkit.org/protocols/view/661701

PhenX Toolkit. (2026 April 15). Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator. https://www.phenxtoolkit.org/protocols/view/661501

PhenX Toolkit. (2026 April 15). Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member. https://www.phenxtoolkit.org/protocols/view/661502

PhenX Toolkit. (2026 April 15). Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version. https://www.phenxtoolkit.org/protocols/view/661503

PhenX Toolkit. (2026 April 15). Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version. https://www.phenxtoolkit.org/protocols/view/661504

PhenX Toolkit. (2026 April 15). Personal Well-being Index - Adult. https://www.phenxtoolkit.org/protocols/view/661301

PhenX Toolkit. (2026 April 15). Personal Well-being index - Child. https://www.phenxtoolkit.org/protocols/view/661302

PhenX Toolkit. (2026 April 15). Physical Activity. https://www.phenxtoolkit.org/protocols/view/661901

PhenX Toolkit. (2026 April 15). Premorbid Adjustment in Psychosis. https://www.phenxtoolkit.org/protocols/view/660801

PhenX Toolkit. (2026 April 15). Psychiatric Symptoms - Frequency. https://www.phenxtoolkit.org/protocols/view/660901

PhenX Toolkit. (2026 April 15). Psychosis Recovery Assessment. https://www.phenxtoolkit.org/protocols/view/661101

PhenX Toolkit. (2026 April 15). Shared Decision Making in Clinical Encounters. https://www.phenxtoolkit.org/protocols/view/662301

PhenX Toolkit. (2026 April 15). Social and Role Dysfunction in Psychosis and Schizophrenia. https://www.phenxtoolkit.org/protocols/view/661201

PhenX Toolkit. (2026 April 15). Eating Disorder Screener for DSM-IV. https://www.phenxtoolkit.org/protocols/view/120601

PhenX Toolkit. (2026 April 15). Eating Disorder Screener for DSM-5. https://www.phenxtoolkit.org/protocols/view/120602

PhenX Toolkit. (2026 April 15). Eating Disorders Examination - Child Interview. https://www.phenxtoolkit.org/protocols/view/230101

PhenX Toolkit. (2026 April 15). Eating Disorders Examination - Adult Interview. https://www.phenxtoolkit.org/protocols/view/230102

PhenX Toolkit. (2026 April 15). Eating Disorders Examination - Bariatric Surgery Interview. https://www.phenxtoolkit.org/protocols/view/230103

PhenX Toolkit. (2026 April 15). Eating Disorders Examination- Questionnaire. https://www.phenxtoolkit.org/protocols/view/230104

PhenX Toolkit. (2026 April 15). Sensitivity to Reward and Punishment - Adolescent and Adult. https://www.phenxtoolkit.org/protocols/view/540601

PhenX Toolkit. (2026 April 15). Sensitivity to Reward and Punishment - Child. https://www.phenxtoolkit.org/protocols/view/540602

PhenX Toolkit. (2026 April 15). Sensitivity to Punishment/Sensitivity to Reward Questionnaire (SPSRQ). https://www.phenxtoolkit.org/protocols/view/540603

PhenX Toolkit. (2026 April 15). Exercise Dependence Scale. https://www.phenxtoolkit.org/protocols/view/650201

PhenX Toolkit. (2026 April 15). Child Eating Behavior Questionnaire (CEBQ). https://www.phenxtoolkit.org/protocols/view/650301

PhenX Toolkit. (2026 April 15). Brain-Body Center Sensory Scales (BBCSS). https://www.phenxtoolkit.org/protocols/view/650401

PhenX Toolkit. (2026 April 15). Positive and Negative Perfectionism Scale. https://www.phenxtoolkit.org/protocols/view/650601

PhenX Toolkit. (2026 April 15). Intolerance of Uncertainty Scale (IUS). https://www.phenxtoolkit.org/protocols/view/650701

PhenX Toolkit. (2026 April 15). Temperament and Character Inventory (TCI). https://www.phenxtoolkit.org/protocols/view/650801

PhenX Toolkit. (2026 April 15). Toronto Alexithymia Scale (TAS-20). https://www.phenxtoolkit.org/protocols/view/650901

PhenX Toolkit. (2026 April 15). Eating Disorder Assessment for DSM-5 (EDA-5). https://www.phenxtoolkit.org/protocols/view/651101

PhenX Toolkit. (2026 April 15). Questionnaire on Eating and Weight Patterns - Adult. https://www.phenxtoolkit.org/protocols/view/651201

PhenX Toolkit. (2026 April 15). Questionnaire on Eating and Weight Patterns - Child. https://www.phenxtoolkit.org/protocols/view/651202

PhenX Toolkit. (2026 April 15). Auditory Continuous Performance Test (ACPT) Battery. https://www.phenxtoolkit.org/protocols/view/660401

PhenX Toolkit. (2026 April 15). Three-Dimensional (3D) Magnetization-Prepared RApid Gradient Echo (MP-RAGE). https://www.phenxtoolkit.org/protocols/view/660501

PhenX Toolkit. (2026 April 15). Brain Connectivity and Activation. https://www.phenxtoolkit.org/protocols/view/662601

PhenX Toolkit. (2026 April 15). AX-Continuous Performance Test (AX-CPT). https://www.phenxtoolkit.org/protocols/view/660201

PhenX Toolkit. (2026 April 15). C-Reactive Protein (CRP). https://www.phenxtoolkit.org/protocols/view/660601

PhenX Toolkit. (2026 April 15). Computerized Neurocognitive Battery (CNB). https://www.phenxtoolkit.org/protocols/view/660101

PhenX Toolkit. (2026 April 15). Relational and Item-Specific Encoding Task (RiSE). https://www.phenxtoolkit.org/protocols/view/660301

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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